welcome & I'm sorry for your pain, situation. I too struggled for a few yrs until I demanded that my Dr do an ANA test (he agreed but thought I was overreacting). He called me 3 days later with the highest results he said he'd ever seen. It was then that I was taken seriously - whew! But then it took 6 mos for an appt.
First of all, have u asked your Dr for any meds bc it sounds like you need some & if u don't ask, they wont give u any.
dx: MCTD(LUPUS), RAYNAUDS, FIBROMYALGIA, L4L5 disc herniation, fracture in L3 fro EPIDURAL in childbirth
meds: Arava, prednisone, NIFEDIPINE, estropipate, cyclobenzaprine, gabapentin, hydrocod (4BTP), fentanyl patch, methotrexate - MTX (on hold), minocycline, clonaxepam (sleep), vitamin D, B stress complex, PRILOSEC, Transderm-Scop (on hold)