Is it sad I am excited to get pictures of the Raynauds for my doctors appointment?

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Age
New Member


Date Joined Jan 2012
Total Posts : 14
   Posted 1/22/2012 8:29 PM (GMT -6)   
I feel so silly about being happy that I got some good pictures of it. And I am not cold or stressed out at all. I was just sitting here reading when I noticed it and remembered everyone telling me to document it. Although my hands turning blue has never bothered me it is one of those things my OB never believed me about. But I still knew it wasn't normal. Just had to share no matter how corny it is. Thanks guys!

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 1/22/2012 8:53 PM (GMT -6)   
If it is sad, then I'm pitiful. I was thrilled when I got photos of my swelling at it's worse and my weird rashes.
It's proof we're not imagining things or exaggerating.
Joy

Age
New Member


Date Joined Jan 2012
Total Posts : 14
   Posted 1/22/2012 8:57 PM (GMT -6)   
Yes and I think that is the best part, but I already knew I wasn't imagining the raynauds, I am a dental assistant and my doctor judges when to adjust the thermostat by my hands. Funny but sad at the same time. All the girls at my work have gotten in the habit of taking my hands in theirs and rubbing them to try to get the color back. And the rashes, they all see the rashes, and hear the popping and the hair loss.

SmurfyShadow
Veteran Member


Date Joined Dec 2008
Total Posts : 2386
   Posted 1/23/2012 5:03 AM (GMT -6)   
I totally understand you Age! It is bittersweet in a way. Glad you have a sense of humor (trust me you need it with auto immune diseases).

I see you are new, welcome to the group, and healing well forums. I'm Dizzy, alrighty it is Desiree, but you can call me Ditzy, Desi, Desiree, DD, Des, Dizzy, trouble maker, but the doctors call me medical mystery :p
"The Walking Medical Mystery"

Too many Allergies / Too many RXs & DXs

A Rare Gem for Doctors and Guinee Pig
~Medical Caregiver and Doctors Worse Nightmare~

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 1/23/2012 5:39 PM (GMT -6)   
I get where I want to wear gloves at work. If it's the least bit cool they turn white then red and feel like fire!
Joy

Age
New Member


Date Joined Jan 2012
Total Posts : 14
   Posted 1/23/2012 10:02 PM (GMT -6)   
Yea I just talked to my friend who is a nurse and her bf is the surgeon who informally diagnosed me long distance, they said that the raynauds can get painful and I am so thankful for them, they told me I need to be firm with my doctor and make sure I get a referral. They also suggested asking for Ultrim which is a non narcotic pain med anyone heard of this. I told them I didn't do well on narcotics and don't want them.

Age
New Member


Date Joined Jan 2012
Total Posts : 14
   Posted 1/23/2012 10:03 PM (GMT -6)   
And thank you Desiree, it is nice to find a community that understands me.

AngelinaATF
Regular Member


Date Joined Jan 2012
Total Posts : 135
   Posted 1/24/2012 11:21 AM (GMT -6)   
Ultram is not considered a traditional narcotic although in some States it is still a controlled substance. It does cause some ppl drowsiness but side effect most common is constipation & light-headedness. Good luck w it!
Angelina.
age 41, Mom of 2 great kids (10 & 7)
MCTD(LUPUS), RAYNAUDS, FIBROMYALGIA, L4L5 disc herniation, fracture in L3 fro EPIDURAL in childbirth
Meds: Arava, prednisone, Nifedipine, estropipate, cyclobenzaprine, Cymbalta, sulfasalazine, gabapentin, hydrocod, fentanyl patch, methotrexate - MTX (on hold), minocycline, clonaxepam (sleep), vit D, PRILOSEC, Transderm Scopalamine, Vit Bcomplex

AmyTx
Regular Member


Date Joined Dec 2006
Total Posts : 185
   Posted 1/30/2012 7:14 PM (GMT -6)   
if you have a diagnosis of raynauds be sure to keep your hands warm and cut free.. sometimes with raynauds we're slower to heal.. on the other hand i had a lazy rheumatologist who when i had major issues let it go too long and then there was nothing left to do.. so keep em warm and take care of your hands and feet..hugs
Female: 38 yrs/old DX: Lupus (dx:'03) MCTD, Raynaud's, Anxiety./panic disorder, GERD, Antithyroid antibodies, Lupus Cebritis, Lupus CNS, Lupus Pneumonitis and Stage 3 & 5 Lupus Nephritis. PRES ,Seizures, Photosensitivity since childhood, vasculitis, left thumb and toe amputated from raynauds, Sjogren's
Meds: cellcept, Plaquenil,Prednisone 10,Miracle mouthwash,bactrim, actonel, caltrate, Xanax, Darvocet, Xopenex inhaler, Xopenex Nebulizer, Spiriva, prevacid, aspirin 325mg, pantaprozole and carafate

omega
Veteran Member


Date Joined Jan 2007
Total Posts : 610
   Posted 2/2/2012 5:29 AM (GMT -6)   
I dun think it's silly at all. I think is absolutely sensible. I remember when I was young and had raynauds, I told my GP, but because she did not see it herself (by the time it was my appt time, my hands were back to normal), she could not give me any diagnosis. Not until she saw me with a rash, she then took it seriously. So I think taking pics is extremely important. Sometimes some docs just won't believe or u/stand until they see the real thing.
DX SLE 1988; APS (Antiphospholipid Syndrome); High-Blood Pressure; Verapmil 40 mg bd (for migraine headaches), Cellcept 2000 mg;Omerprazole 40 mg; Warfarin; Calcium + Vitamin D 1200mg, Folic Acid 5 mg; Simvastin; Candesartan 4 mg
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