My name is Paula and I have been suffering with what appears to be lupus for about 3 months. I also have crohns disease which was diagnosed about 14 years ago. about 18 months ago I started to get some joint pain, my GI thought that it was just arthritis that can sometimes accompany crohns sufferers, but then about 3 months ago after I got a bad flu, I started to get very fatigued, and some serious joint and muscle pain. I suffered with it for a while, but then went to my GP who took some bloods - I tested positive to dengue fever, and my ANA levels also suggested lupus (not sure what the exact readings where). Second lot of blood tests showed me as testing negative to dengue fever and so the dr's are convinced I have lupus. I am waiting on an appointment with a rhuematologist for some further testing and hopefully a definite diagnosis. I have been told for general appointments there is a wait time of up to 18 months! but that I am an urgent case and so I am hoping that it won't be so long.
The pain I am suffering is quite bad, sometimes feels like my bones are breaking, and there isn't much that seems to relieve it - anything that helps seems to make my crohns worse.
For my crohns I am on imuran, also humira (adalimumab) - I have convinced myself that I have drug induced lupus from the humira but of course won't know that for some time. My GP wanted me to start taking steriods to help with the inflammation, but my GI doesn't want me to due to the other meds I am on. I have also just started taking Endep (my first dose was last night), I think I slept a bit better but feel a bit dopey today.
I have lots of questions, lots of worries, I am very worried about the future and the drugs I might have to take, so expect lots of questions!