Positive ANA-negative for AI-frustrated

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New Member

Date Joined Jan 2012
Total Posts : 1
   Posted 1/26/2012 3:09 PM (GMT -6)   
Hi All,
I'm a newbie and was hoping this forum would be a good place to "vent' so to speak.  I have suffered from chronic fatigue for about 2 years, and just recently (over the past 8 months) have started experience awful joint pain in my knees, hips, and wrists.  For the last two years I"ve gone to my regular doc every 4 to 6 months and he always blew me off when I would try to tell him how I was feeling, because fatigue is a symptom of so many things.  Last Feburary he sent me for the regular set of bloodwork(thyroid, anemia, diabetes, vitamin d) and when everything came back normal, proceeded to ask if I wanted to see a psychiatrist.  Back in December after another regular office visit with him blowing off my symptoms I left the office and sort of flipped out the next day and called his nurse to see what other things we could test for.  His response was to send me to the nurse practioner in their office to see if maybe she could steer me in the right direction.  Thank heavens for her.  She took 1 look at me and said it's pretty obvious you're fatigued.  She ran some different bloodwork(a couple types of iron, vitamin d, mono spot, ANA, cbc with a differential, and rheumatoid factor), my vitamin d was low at 21, so I"m on 5000 IU to boost that.  She also referred me for a sleep study which I completed at the beginning of this week, so no results on that yet.  My ANA came back positive so she recommended me to see the Rheumatologist.  He ran other blood work and had me get quite a few x-rays done.  It's been 2 weeks and I hadn't heard from the office yet so I called after work today to see if they had received my results.  Apparently everything came back normal.  Which is GREAT!  But now I feel like I'm back to step 1.  I have a followup appointment with the Rheumatologist on February 14th, and now I have no clue where to go from here.  I don't know how much longer I can go see doctors that think I"m a nutcase.  I'm 27 years old, but feel like I"m 80.
Sorry about the sob story, I just don't know where else to turn to.
Any advice would be GREATLY appreciated,

Elite Member

Date Joined Jul 2009
Total Posts : 14475
   Posted 1/26/2012 4:31 PM (GMT -6)   
Wait and see what the doctor says about the results. A good doctor will think about your symptoms and your bloodwork.
My bloodwork was just positive ANA and nothing else. He looked at my symptoms and said "you have lupus".

Forum Moderator

Date Joined May 2005
Total Posts : 7669
   Posted 1/26/2012 4:48 PM (GMT -6)   
I agree, wait and see what the rheumy has to say. Obviously s/he believes something is going on or they wouldn't have ordered tests. Xrays, for instance, would be used to differentiate between arthritis and lupus. Just because the tests ruled out a few things doesn't mean the dr will dismiss you -- there are lots of other causes to be checked out -- and any good doctor wants you to feel better, no matter if there is a diagnosis or not.
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde
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