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shellybooboo
New Member


Date Joined Feb 2012
Total Posts : 3
   Posted 2/2/2012 11:49 PM (GMT -6)   
hi im new trying to find some one that can help me with lupus profunds :-)
i have a rare form of lupus . i have just had to stop work a year a go i am trying to learn how to deal with all this . i have had lupus for 18 years

Butterflake
Veteran Member


Date Joined Jun 2006
Total Posts : 1650
   Posted 2/3/2012 2:45 PM (GMT -6)   
Welcome to our forum Shellyboo. I don't have lupus profundus, but just in case you haven't searched google, please do so. There are many sites, but here are two sites I found:

1.     dermnetnz.org/immune/cutaneous-lupus.html - New ZealandCached

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Jump to Lupus profundus‎: Lupus profundus is the name given to lupus affecting the fat underlying skin and may also be called 'lupus panniculitis'. it may ...

Discoid lupus erythematosus - Subacute lupus erythematosus

2.    Lupus panniculitis (lupus profundus)

dermatology.cdlib.org/DOJvol7num2/nyu2/9/9.htmlCached - Similar

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Lupus panniculitis (lupus profundus) Bruce E. Strober Dermatology Online Journal 7(2): 20. New York University Departent of Dermatology ...

I sincerely hope someone here can help you. Please stay in touch and let us know how you're doing. Thanks for checking our site! Love, Butterflake aka Donna

 
 

Jennysparkle
New Member


Date Joined May 2012
Total Posts : 0
   Posted 7/4/2012 8:39 AM (GMT -6)   
Hi, i know its been a while since you posted here, but ive just come across your post! I have Lupus Profundus as well and am trying to gather as many of us as possible together so we can discuss our symptoms, treatments etc. I have set up a group on Facebook for this (lupus profundus (pnniculitis) support group. I hope you see this and can join the group xx
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