Giant Cell Temporal Arthritis Vasculitis Lyme Disease

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New Member

Date Joined Feb 2012
Total Posts : 4
   Posted 2/8/2012 11:06 AM (GMT -6)   
High sed rate almost 100 put on predisone 50mgs. had tempel byopsy false neg. due to perna. on 50mgs for 4mo. sed rate goes down, start lowering perd. get to 30 sed rate goes up headack body hurts terrable cant walk cant get out of chair cant sleep . still on pernisone now 15 went to NYU in N.Y. for complete workup, out come the same but have thought that my autoimmune system is a big problem I have Hosemotos disease ofthe thyroid, on medication almost most of my life. Am now going to be 80 . Been also diagnosed with noropathy of both legs not assoctated with Diabetes, I'm not a diabetic, but the med made me boarderline have totest AND WATCH my sugar, blood preasure is also climbing have to get off perdnisone do you know anything new a bout why sed rate cant be controled I never had a blood problem is their anything out there that my 4 doc. dont know?lm now on medication for the lymes. please answer with any information I see the infectious disease doctor today about the antibiotic i'm on for the lymes. johnathan

Post Edited By Moderator (Lynnwood) : 2/8/2012 11:44:05 AM (GMT-7)

Veteran Member

Date Joined May 2005
Total Posts : 7723
   Posted 2/8/2012 11:11 AM (GMT -6)   
I;m sorry your doctors aren't able to help. This is a forum where we talk about Lupus and I can't think of anything that would help you. Sorry.

There is a forum about Lyme's disease, also one on Thyroid disorders - maybe they will have some ideas for you.
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde

New Member

Date Joined Feb 2012
Total Posts : 4
   Posted 2/8/2012 11:37 AM (GMT -6)   
thanks for the info. I no about thyroid disorders, I dont no about sedrate.?I no what it does but I dont no how to correct it.
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