Very Confused!!!

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MizPiggy31
Regular Member


Date Joined Feb 2012
Total Posts : 114
   Posted 2/9/2012 7:59 PM (GMT -6)   
I recently got blood results from my primary doctor. My ana titer was 1:160 so she is sending me to a Rheumatologist. I am very scared because their is family history of Lupus, MS and Socadoses (sp.). My body aches all the time and I am very tired even though I know I get enough sleep. My mouth is dry and I am constantly thirsty. My kidneys are spilling protein into my urine so my doctor wants me to see a kidney specialist.

Is this Lupus? I am really confused. Waiting to get an appointment with a Rheumatologist.

MizPiggy31

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 2/9/2012 9:12 PM (GMT -6)   
Have you looked at Lupus.com, yet?
They have a list of lupus symptoms and how affects our bodies.
You probably know many of the symptoms of lupus already.
Only your rheumy can tell you positively if you have lupus or another autoimmune disease.

Most of us have different symptoms with similarities also since lupus is a systematic disease.
My body aches everyday to some degree. I'm tired or run out of energy quickly. I have a dry mouth most of the time. My kidneys registered a protein spill on my last two tests.

Once the doctor determines what you have you will be placed on the right medicine to help your symptoms.
For my fatigue and inflamation I take plaquenil and mobic. If I have really bad pain I take tramadol. My rheumy hasn't recomended a kidney doctor for me yet. I've got a feeling he's waiting for another test for confirmation.
Joy

MizPiggy31
Regular Member


Date Joined Feb 2012
Total Posts : 114
   Posted 2/10/2012 6:36 PM (GMT -6)   
Right now it seems that I have maybe 2 or 3 of the symptoms listed. My other concerns are that my blood pressure is high, cholesterol is super high and my kidneys are spilling protein in my urine. I am still trying to get in to see a Rheumatologist. My primary doctor said they might have to do a kidney biopsy. Just really scared right now. My aunt had lupus and I remember the pain she was in and what she went through before she passed. confused

Lynnwood
Veteran Member


Date Joined May 2005
Total Posts : 7723
   Posted 2/10/2012 9:18 PM (GMT -6)   
Try to remember that the medications and treatments available today are much advanced over what those of the generation before us had available to them. What happened before doesn't have to be repeated.

Just deal with one thing at a time and it'll work out, try not to be scared just wait till you have some facts to see what you're really dealing with.

Cheers
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING-LUPUS & LUPUS-RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 2/10/2012 9:36 PM (GMT -6)   
My brother has polysistic (sp?) kidney disease. He's had a biopsy before. It is uncomfortable, but just remember it will help you find out answers. I rather have answers than sit and worry.

Lupus affect everyone differently. If you take the path one step at a time it's not too bad. There's no point in worrying about the "what ifs". What will be will be and you can't change it.

I've found an excellent sunscreen that helps with the UV protection. It's called spectrum by neutragena. It's 100 SPF and it really helps cut down on the rays, therefore I have less pain from the sun and florescent lighting exposure.
Joy

MizPiggy31
Regular Member


Date Joined Feb 2012
Total Posts : 114
   Posted 2/11/2012 9:58 AM (GMT -6)   
Thank you both for your responses. I guess I will wait until I can see the Rheumy. The first available appoint was March 27th. My primary wants me in before then. I call primary and now I am waiting to hear back from her.

I will try not to stress. Thank you both again.
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