Working and having Lupus/Fybromyalgia

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Date Joined Feb 2012
Total Posts : 1
   Posted 2/13/2012 9:55 PM (GMT -6)   
My name is Shannon i was dx with SLE 08/2010 but started having symptoms of Lupus 2 years prior but doctors thought it was depression/migraines and stress. I find it getting hard to work my Job in the Medical field for a very fast pace Medical practice with several doctors. I'm on my feet pretty much 7 hours out of an 8 hour day. i feel that i cant concentrate on my work, i have trouble remembering also spelling and remembering peoples names. Im scared that my Lupus is getting worse. I continually have severe pain that radiates on the right side on my head from my eye to my ear and down the back of my head which my doctor has now added Gabapentin. My eyes hurt extremely on a daily basis. I cant walk when i wake up in the morning and by time my days is ending Im extremely tried and have leg pain when I go to bed which keeps me up. Im frustrated with this disease I feel like im always sick, i have 3 kids and a wonderful husband who help out as much as they can. I just dont know what to do anymore. I feel hopeless. cry

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Date Joined May 2005
Total Posts : 7674
   Posted 2/13/2012 10:32 PM (GMT -6)   
Are you getting any treatment for your Lupus?
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde

Regular Member

Date Joined Sep 2011
Total Posts : 26
   Posted 2/14/2012 1:39 AM (GMT -6)   
Hello Shannon,
I truly understand your pain and frustration. I too have similar issues and then some. Have you ever heard of Systane. Its about $15 at Walgreens/CVS drug stores. Its an eye gel that helps with the pain or discomfort, burning, watery, dry eyes. Biotene helps with the dry mouth that is associated with Sjogren's. Are you taking Plaquenil or Predinisone? I just started on Plaquenil. I had become very frustrated and someone in this forum advised me of the trial and error of finding the right treatment. When the doctor started me on Plaquenil to coincide with Prednisone, Pamelor, Famatodine, and Hydrocodone I felt a since of relief and hopeful that this will bring some relief. Its awesome that you have a loving and supportive husband and kids that is definitely needed. I was also advised, that if the medications should be taken at the same time everyday, & stay out of the sunlight.
Someone in this forum stated to me that Lupus causes chemical imbalances in the brain. When I spoke to my Rheumy Friday, she told me that was true and the reason she has me using Pamelor. I too have problems with remembering things and feel frustrated when I have to think of the spelling of simple words.
I hope that you get relief soon, and like everyone else in the forum we must hang on, keep being strong, and not let Lupus overwhelm us too greatly.
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