Hello, when I first began to post on HWF, I didn't share my entire story. I visited my doctor today and left with intense fear. Please read the following and if there are any suggestions please feel free to hit me with whatever you got. Crazy, weird but true. Many years ago I was told I may have Lupus. After feeling better I never really looked into the probability of Lupus. But since then I have encountered numerous health problems.
Sorry for this being so lengthy but I am seeking answers. I have endured gall bladder removal, several egd-ercp procedures,pancreatitis, hepatitis, thoracentesis for fluid on lungs, four breast lumpectomy,open heart surgury due to pericardial tumor, several kidney infections, several bladder infections, lesion on right kidney, rashes, migraines, mouth ulcers, severely dry, burning stinging eyes, puffiness/swelling of joints, achey joints, carpel tunner, tmj, itching for no reason at all, extreme hair loss and confusion. I also have spinal stenosis, pinched nerves and three bulging disc and pain radiating down my left leg.
Recently, I had a doctor who stated she would make every attempt to get to the bottom of my health issues. After blood work returned 1:16 titer, speckeled among other positive ANA results, I was told again 21 years later that its Lupus. Once I was referred to a Rheumy, I was told it may not be Lupus. When I showed pictures of blue fingers, hair length differences, asking about the pain, I was then diagnosed. Now after all these years I am 43 walking a cane from time to time, flank pain, urinating every hour and I’m scared. I’m now taking Prednisone, Pamelor, Prednisone, Imitrex, Famatodine, Vitamins, eye gel, Diclofenac. No one seem to understand my level of fear. Are these medications going to make it worse? The flank pain, lower ab pain, frequent urination, nausea, & vomiting is scaring me. My grandmother is dying with Renal failure due to cancer as we speak and I’m paranoid that it may be hereditary and thinking Lupus is attacking this organ (my kidney). It seems as if it was Lupus that was the cause of many of my previous ailments but 20 plus years ago, Lupus was a rare diagnosis and doctors didn't look further into it and neither did I. I have found myself thinking crazy thoughts because I'm tired of all the pain. Can anyone give encouraging words, please!