Do I or don't I have it?

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New Member

Date Joined Feb 2012
Total Posts : 2
   Posted 2/18/2012 11:24 AM (GMT -6)   
Hello, I am new here. I've been having lots of strange symptoms for years now, which had me feeling like I am 130 years old. I'm 32. I've been diagnosed w raynauds via a water immersion test back in the summer. My blood work has been negative for everything until last week.

Last week I visited the rheum for a follow up and got my tests back. My ANA was 1:640 and homogeneous pattern. Most other things were negative. He said that based on symptoms I most likely have lupus, but for now he is calling it an undefined disease. He prescribed plaquinil.

The thing is I'm not sure I have lupus. I have extreme fatigue, and muscle and joint pain but no swelling or redness. I get random looking rashes but they don't last. I have a rash on my cheeks but I'm not sure it is triggered by the sun, and it is flat and not raised. I get I'll, nauseous and shaky when out in the heat and sun, but it happens when mostly in the shade. And when I lean on something or have something touch my skin for a few minutes, I get an itchy, hot spot there. So, if my work badge presses on my forearm while I'm sitting, for example, that happens.

I also get these terrible headaches in my temples and behind my eyes. They pulsate and make me miserable.

So, does it sound like lupus? Or am I taking meds for no reason?

Veteran Member

Date Joined May 2005
Total Posts : 7723
   Posted 2/18/2012 11:46 AM (GMT -6)   
Lupus is very hard to diagnosis and often part of the diagnostic process is to see how your symptoms react to certain lupus medications. Plaquenil will not harm you, and is almost always used as a first med for lupus and many other auto-immune diseases. It may take up to 3-4 months to observe any changes in symptoms - a few people have some stomach upset that goes away after a few days.

Does it sound like Lupus? Maybe, but could be lots of other things as well, thus the "undefined disease"...sure he didn't say UCTD (undefined connective tissue disease)? That is actually a medical diagnosis. I think you should follow his advice and take the medication he prescribed you...if you don't make sure to tell him.
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde

New Member

Date Joined Feb 2012
Total Posts : 2
   Posted 2/18/2012 11:55 AM (GMT -6)   
There is a really good possibility he did say UCTD. He handed me a pamphlet on lupus and kept repeating lupus so thats where i was confused. I am def taking the meds until i see him. If nothing else hopefully itll help this costocondritis and pleuresy pain im having.
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