Hello, I am new here. I've been having lots of strange symptoms for years now, which had me feeling like I am 130 years old. I'm 32. I've been diagnosed w raynauds via a water immersion test back in the summer. My blood work has been negative for everything until last week.
Last week I visited the rheum for a follow up and got my tests back. My ANA was 1:640 and homogeneous pattern. Most other things were negative. He said that based on symptoms I most likely have lupus, but for now he is calling it an undefined disease. He prescribed plaquinil.
The thing is I'm not sure I have lupus. I have extreme fatigue, and muscle and joint pain but no swelling or redness. I get random looking rashes but they don't last. I have a rash on my cheeks but I'm not sure it is triggered by the sun, and it is flat and not raised. I get I'll, nauseous and shaky when out in the heat and sun, but it happens when mostly in the shade. And when I lean on something or have something touch my skin for a few minutes, I get an itchy, hot spot there. So, if my work badge presses on my forearm while I'm sitting, for example, that happens.
I also get these terrible headaches in my temples and behind my eyes. They pulsate and make me miserable.
So, does it sound like lupus? Or am I taking meds for no reason?