In the last year since the birth of my second child I have been just generally unable to cope and unwell. I never feel well! Tired, moody, confused by everyday tasks. In my third trimester of pregnancy I was diagnosed with low platelets (70) This meant no epidural during labour and constant monitoring. In saying that when my baby was born they werent too concerned about
the heavy loss and clots I passed for a couple of weeks.
Heavy loss I experienced with my first child and had pre eclampsia, high blood pressure, gestation diabetes with 5 injections a day an fluid retention, in saying this I never bled with concern after all this.
After the birth of my second child they found a mass inside my uterus about 4 months. They operated straight away suspecting retained placenta! Can you belive it... I was so scared and didnt know what was going on when that came to me to tell me I was pregnant. This is not possible with the bleeding all the time and the general feeling I had. They tested the pregnancy hormone and found it to be within the limits of 11 - 13 weeks NOT POSSIBLE. They also suggested before the surgery I would require chemotherapy to rid this hormone if the curet was not a success. This condition is known as Molar Pregnancy.
After the blood tests every 2 days for 2 weeks and the hormone returned to normal I was relieved, but as this happened the bleeding returned. They put me through a series of 3 contraceptive pills that did not stop the bleeding right throughout the cycle. I gave up breast feeding feeling tired and exhuasted. My baby had also been sick with Kidney Reflux and will have an operation to remove the kidney in the next couple of months.
Around christmas time I had had enough. My husband had to go away for work and I was here with the 2 kiddies when I went and got another opinion. This doctor was very sympathetic towards me and really felt there may be more to it. Because I had bruises all over me for no particular reason and headaches and trying really hard to cope with the everyday things he tested me for Lupus. My test results came back positive and I have just seen a heamotologyst. They have carried out a number of tests also including HIV, Heps, and so many others (I had 18 vials taken in one sitting) and bled for a while after that too. My platelet count was at 45 the last time they checked, that is the lowest result they have for me.
Im concerned that this is the least of my worries as it looks like I need to have a full hystorectomy and they wont do this until they know what else they are dealing with.
I just dont know what to do anymore, Im tired, Im a mum with 2 small children who need me and I cant help but feel a little guilty that I am unwell. My husband is away most of the time and when I try to talk to him about it, he just says it will all be fine. I dont feel this way : (
Just wanted to see if there is some advice out there as I hate when the doctors dont tell you things. Also wanted to make sure I am doing everything I can.
Thanks : )