Lupus Cerebritis or something else?

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New Member

Date Joined Feb 2012
Total Posts : 1
   Posted 2/28/2012 2:26 AM (GMT -6)   
My dad has had SLE since his mid 30s. I was only 1-2 when it onset, 20 now.

He has had lupus cerebritis before. This was mainly apparent by
1) incessant talking/rambling (always had the need to explain something)
2) sudden epiphany
3) not making any sense most of the time
4) being very very forgetful

That happened last Summer, and it scared the hell out of me. It was like he aged 10 years, and I almost feel like he's never fully recovered from it. I felt terrible for him and awful about myself because I didn't have the patience to deal with the incessant talking and rambling, and some of those effects seem to have become permanent but on a lesser scale.

Quite recently though, I got a text from my sister declaring that my dad had another cerebritis episode. I went home, and my dad insisted that I go out to eat with him. He spent 3-4 hours talking me to death and I was nearly convinced he had cerebritis again, but mainly what he was talking about is how he was so upset because my sister jumped to conclusions about cerebritis and how he was just trying to explain something that she couldn't understand(which is not completely out there as she's not the quickest to understand abstract concepts nor is she very patient). Also, he mentioned waking up and being filled with inspiration and motivation for the first time in years. He had certain "ideas" which he thought were brilliant and started jotting them down immediately so that he wouldn't forget them. He was seeming a bit jittery but his conversation was comprehensible unlike when he had cerebritis the first time. Then again, a few days later, he woke up and was stricken with more "brilliant ideas" which I suspect to not be quite as brilliant as he thinks. I am starting to worry about it a bit, but I don't know exactly what to make of it. He insists that he doesn't have cerebritis but his word on that is almost meaningless given the implications of the symptoms of the condition. He recently also had a new lupus manifestation/flare which included skin abnormalities which are starting to fade as a result of his Predanoze increase.

Furthermore, he is currently weening off of anti-depressants which he was taking after being sent into depression after my grandmother died. (for the last 3 years).

Is this Cerebritis or is he just suddenly motivated/excited? Excluding his recent depression, he has always been a very motivated, hard-working person, and his explanation of these actions are just that he is not depressed anymore.

Veteran Member

Date Joined May 2005
Total Posts : 7725
   Posted 2/28/2012 11:26 AM (GMT -6)   
I am by no means a psychiatrist, but it seems to me this is much like descriptions I have read of bi-polar disease, or manic-depressive, or whatever the most popular name for it is today. The illness where depression alternates with high-energy "brilliance"...

Who has been treating him for the depression? And who for the Lupus? I think a consultation with both doctors is in order -- regardless of what it turns out to be, he needs to be seen and treated -- his behavior just doesn't seem normal.

Best Wishes,
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde
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