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oreo11
Regular Member


Date Joined Feb 2011
Total Posts : 399
   Posted 2/28/2012 9:27 PM (GMT -6)   
After much thought and deliberation I have decided to follow through with the Rituxan therapy that my doctor is proposing.  I have gotten so Prednisone dependent that I can't seem to function without it.  Every time we get down to 5 mg., my symptoms come roaring back full force.  I have been developing side effects to the medication-weakened bones, heavy bruising, stomach problems-that sometimes comes with long time steroid use, so my decision to try something else was relatively easy to make.  I have exhausted all of the other possibilties.  Cell cept had been a god-send, but I experienced severe bone marrow suppression from it.  I can't take NSAIDs and Methotrexate made me quite ill.  My body loves Prednisone and I have done quite well with it.  Too bad it has such horrid side effects with long term use.  I am waiting to hear back from my insurance company and we will go from there.  I have to admit that I am a little leery of this new medication, but after researching it and getting a second opinion, I thought it was the best way for me to go.  I want to keep feeling well and not getting so sick all of the time.  Any thoughts from any other forum members would be greatly appreciated!!

Butterflake
Veteran Member


Date Joined Jun 2006
Total Posts : 1650
   Posted 3/4/2012 10:28 PM (GMT -6)   
Hi Oreo. I was just wondering how you're doing. I was on Cellcept for 2 years, but thankfully no harsh side-effects. I had to stop it for my most recent surgery and I both thought it was a good time to take a break. Regardless, I'm a prednisone junky even with Cellcept, but since prednisone is the lupie "go to" drug in times of crisis I'm currently maintaining on 5mg.  I hope the Rituxan works well for you. Love, Butterflake

oreo11
Regular Member


Date Joined Feb 2011
Total Posts : 399
   Posted 3/12/2012 4:40 PM (GMT -6)   
Hi Butterflake,
 
       Currently, I am tapering off the Prednisone to get ready for the Rituxan.  I am down to 10mg one day and 0mg the next.  Each time I lower the Prednisone, my body, which LOVES Prednisone, goes through some unhappy times.  Thankfully, it doesn't last long.  My Rheumy and I are just waiting to hear back from the insurance company to get the green light to proceed with the Rituxan.  I met one woman who has had remarkable luck with this drug.  I had misgivings at first because of all the possible side effects, but realized that all medicines have their good and not so good aspects.  Thanks for your thoughts!
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