Hey guys, I'm new to the forum! I'm looking for answers, (well, mostly thoughts) on what I've been dealing with.
I'm a 20 year old female. No drugs, drinking, smoking, or even sex. Tried to be pretty healthy in my life.
When I entered High School, I started feeling... just cruddy. Run down. Tired... but nothing really specific though. I had always been healthy. Then one day, when I was 16, I broke out in hives, everywhere, which happened once in my life (when I was 3). I began to swell everywhere too, in my joints and hands specifically. Then my joints began to HURT. So painful and warm to the touch. It lasted a few hours, and the urgent care doctor told me it was arthritis. I didnt have health insurance so I never followed up with a doctor.. all I know is it isn't rheumatoid arthritis.
Ever since that day my life has been drastically different. I finally got sick of it, bummed money from my parents, and so a low-cost doctor who diagnosed me with fibromyalgia and ran an ANA test. It came back positive with a 12 (not too high, but still positive) and he tested my SS-A antibodies (negative) and SS-B antibodies (came back at a 6.6, with the normal range being from 0.0 - 0.9). I went to a rheumatologist but was only able to see a nurse practitioner, who spent a majority of the time telling me a positive SS-B means nothing without SS-A and she didn't believe I had lupus.. but then when she left to ask the doctor, he said he believed I either have Lupus or Sjogrens (which is a type of lupus anyway) but I cant afford anymore blood work. They said with a diagnosis you usually have to match the symptoms with the blood work, so, here are my symptoms:
Gastrointestinal upset (started a few months after the hives breakout)
- Gastroparesis, cramping, diarrhea, ect
Horrible fatigue.. could probably fall asleep at any given time if I had the opportunity
When I wake up I don't feel rested, no matter how long I sleep
Short term memory problems
Eyes are sensitive to light
Overheat easily... warm showers make me dizzy, light-headed, and feeling like I'm going to pass out
Cheeks turn red in the sun (I can't tell if this is a mild butterfly rash or just blushing, though I believe I have had a butterfly rash once after a warm shower)
Small rashes or skin irritations. Nothing major, but sometimes I'll have small red itchy rashes, or my skin will feel like it's been stung with no visible marks
Swollen hands, always (started with the hives and never seemed to fully go down. some days are worse than others)
Arthritis/joint paint in my knees, ankles, wrists, fingers (I use a cane now for exceptionally bad days)
Yeast infections often
Tingling hands and feet
Cold hands and feet
Occasional metallic taste in mouth
Sometimes my heart pounds and I feel a bit dizzy, and feel pressure in my head (weird sensation, hard to explain)
Dry eyes and mouth (though not severe)
Pain when taking deep breaths
Shortness of breath
Tendon problems, especially in my arms. Apparently the tendons are damaged and have been for about
2 years now... very painful.
My life has just been a roller-coaster for years because of whatever this is... I'm sick of doctors not listening, and I'm sick of feeling like I'm crazy. Do these symptoms sound like Lupus?? I just want answers that I unfortunately cannot afford right now. From what I've read online it is possible to have Lupus with SSA being negative but SSB being positive. Could this be what I'm fighting?
I really appreciate any replies.. I feel so alone in this and it would just be wonderful to talk to people that understand!
Post Edited (BrokenCompass) : 2/28/2012 9:33:06 PM (GMT-7)