Lupus Nefritis and a WLS (weight loss surgery)

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Griselda81
New Member


Date Joined Mar 2012
Total Posts : 3
   Posted 3/9/2012 2:32 PM (GMT -6)   
I have been diagnosed with Lupus in 1997 (16 years old) and since then it has developed into Lupus Nefritis. In 2001 I started a chemotherapy treatment under the name of Endoxan for two years in order to treat the Lupus Nefritis and to minimize the amount of protein that was leaking. I was told that I will probably (95%) not be able to have children. There are many things that have been said to me, that I was not allowed to do or I should avoid. But I decided to pull through by going to school, get my degree, a job and a family. I am 30 years old now and have been struggling with the excess weight i have gained through out the years. My Lupus has been in remission since 2007 and have not been on any medication since then. In May 2009 I was pregnant, but sadly after almost 3 and a half months the heart stopped and I had to have it removed. In Aug. 2009 I got pregnant again and on June 16 2010 I gave birth to a healthy baby girl. During my pregnancy I have high levels of protein loss, but didn't get a flare up, I was ordered by my doctors to stay at home for the last 4 months of my pregnancy. No medications was given, and until today I am still medication free.

In '97 before i was diagnosed i was very active (basketball, body board, dance etc) and weighed about 75 kilo's. Since '97 - 2006 I have been on a high dosage of Prednisone and gained tons of weight. I have tried diet, gym and all lost some weight, but it always came back once i felt the fatigue and couldn't do much. Now i weigh 142 kilo's after giving birth to my daughter. I have been researching the different WLS and would like to know from people who have done the surgery of their experiences. A friend (not a lupus patient) did the Sleeve surgery and she is doing great, but she also had 6 tumors removed from her stomach about a month ago don't know if it has something to do with the surgery or not (I don't think so).

I would like to know what side effects you had, flare ups? If you know anyone who has Lupus Nefritis and did a WLS successfully. Any information would be great. I am really looking forward to having a WLS surgery.

Thanks for your help.

Griselda81
New Member


Date Joined Mar 2012
Total Posts : 3
   Posted 3/9/2012 3:02 PM (GMT -6)   
I forgot to mention that I am new here, and a bit afraid that by doing the surgery I can contribute to a flare up or any other symptoms to arise which I really would like to avoid. I have a great husband who supports me in everything, but I am afraid that there is a possibility that our lives will become more difficult after the surgery.

Have a great weekend... and thanks again!!!

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 3/9/2012 4:10 PM (GMT -6)   
I think I heard of some people who posted here last year who had the gastric bypass surgery. One died and the other was in a coma for several weeks???

Lynnwood, Do you remember them? I was just beginning to post here and I think I remember something about this....Or is my memory faulty?
Joy

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 3/9/2012 10:13 PM (GMT -6)   
Joy is correct, in Nov/Dec of 2010 two of our members had weight loss surgery. One did pass away, the other had some complications and was placed in a medically-induced coma for several weeks. She has since recovered but has had to have her surgery "undone".

It sounds as though you have been symptom and drug-free for over 1.5 years, so your situation would be quite different. If you tend to flare a lot of easily, I would stay very far away from any of the weight-loss-surgeries. In your case, it may be a safer situation but I would still make sure my rhuemotologist is totally comfortable with and supportive of the idea.

Best wishes,
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING-LUPUS & LUPUS-RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde

Griselda81
New Member


Date Joined Mar 2012
Total Posts : 3
   Posted 3/12/2012 2:05 PM (GMT -6)   
Hi Lynnwood and Joy,
Thank you for your message. I did read something from 2010 but was wondering if anybody had surgery done in the last couple of months. I have been since 2007 off the meds. So actually 5 years. I did not receive any medication while being pregnant or even after the birth. My concern is when I read that one of the members that had little flare ups was the one that died.

Since 2007 I do not have severe flare ups, the flare ups that I do have is fatigue and butterfly rash, but I do work hard. I have a full-time job as a communication coordinator at an environmental non-profit organization for the island of Bonaire. I am currently in 4 different foundations that organize events on island such as windsurf competition, pageant shows, regatta sailing competition etc. So, I don't know if it's because I am a bit too active at work and after work plus I have my daughter that goes everywhere with me and also my husband who I support with his foundations.

It sounds really overwhelming does it???

Thanks again!!!

Weleetka
Regular Member


Date Joined Oct 2007
Total Posts : 185
   Posted 3/12/2012 2:28 PM (GMT -6)   
I don't know what the sleeve surgery is but I've heard on the banding.. if you have lupus.. you are not a candidate... I would not do this...at all.. after what happened to these people on this board...

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 3/14/2012 9:22 PM (GMT -6)   
I guess to some of us nov/dec of 2010 doesn't seem so far away...only 15 months or so! lol Butterflake, who was in a medically induced coma for months, just had her final bit of corrective/reconstruction surgery a few weeks ago and is still battling flares and complications. She happens to live within a few miles from me so we talk regularly

I've been moderator here for 7 years and can't recall any but those 2 instances of people deciding on doing a surgery. I know there are several kinds, and with your longer history of "quiet" lupus your experience will likely be much different.

Please let us know what you decide and how it goes.
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING-LUPUS & LUPUS-RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde
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