Prednisone issues...onto metho....?!...and possible Celiacs

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MissLadybug
Regular Member


Date Joined Oct 2008
Total Posts : 261
   Posted 3/11/2012 11:23 AM (GMT -6)   
So I've been on plaquenil since 2008 and tried pain meds, Nsaids, etc. Things got worse after my last pregnancy which I delivered in Sept of 2010. I started having Pleurisy issues after that. I've tried to come off the Prednisone a few times now. The first time I had a flare up, the 2nd time I got withdrawals I guess because my adrenals weren't kicking in and I was having adrenal gland "failure" symptoms. Currently I'm on 5.5mg of Pred and due to drop another mg this Tuesday. My rheumy had said if my pain persisted we would try Methotrexate and then in the future if need be we would try Benlysta. So I guess I'm trying to prepare myself for my first "chemo trip" and just wanted to know everyone's experiences/suggestions, etc.

On prednisone I have not gained weight at all in fact i've lost it. My complements are now constantly low. I only weigh 97lbs and cannot gain anything. I was told over a year ago that I have IBS and GERD but nothing was every said beyond having IBS. Is there a treatment for it? I recently saw my rheumy and she suggested being tested for Celiacs due to my inability to gain weight despite what I try to do as far as diet etc. I am allergic to soy/barley and many other weeds, grasses, pets, feathers, etc etc. Also allergic to chemicals in sunscreen and highly allergic to black walnut trees. So I am waiting on the lab results for the specific Celiac tests and if they're negative I'm assuming I have allergies to foods and need to avoid them which would put me on a gluten free diet anyway due to the barley allergy. BUT the big dilemma is the soy....literally everything almost is made with soy in it. So what in the heck do I eat???? Anyone with this problem? So bummed out because I look like some drug head and I'm not....don't drink or smoke or anything....Lupus just makes me look bad lol....Help!
*Lupie Britt*- Epilepsy Dx: 2003 & UCTD w/SLE features Dx: 2009 SLE/Lupus Dx: May 12th 2011--Current Meds:Plaquenil-200mg 2x/day, Prednisone-1mgs taper 1mg every 4 wks, Keppra-750mg 2x/day, Daily Vitamin- 1 pill/day, Folic Acid- 1mg 1x/day, Protonix 40mg 1x/day,Vit. D 800IU's 1x/day, Lyrica 50mgs 1x/day, Flonase 50mcg 2 sprays each 1x/day.

*Lord_Walters_Lady*

FW
Regular Member


Date Joined May 2007
Total Posts : 482
   Posted 3/11/2012 7:49 PM (GMT -6)   
Hello! I am allergic to so many things and I know exactly what you mean. No soy for me either. Try to keep your diet as basic as possible. If you are able to tolerate them, fresh fruits and vegetables are good. There are more and more gluten and soy free choices becoming available but just a warning, they are expensive. A good thing for you, though, most gluten free foods are high calorie! I eat fish and chicken but with no seasonings. Every once in a while some red meat. Mrs. Leepers makes some noodle dishes that are soy and gluten free. And "Enjoy Life" makes some good snack bars that are everything free!

Best of luck to you. Hope that you feel better, soon.
Take care, Fran

Dx: Lupus, sjogren's, celiac, severe allergies.
Daily Meds: Plaquenil, Zyrtec. Aciphex, Nasacort, Prozac, Ambien CR, CellCept, Zantac.
Daily Supplements: Calcium, B-100 Complex, Daily Vitamins.
As Needed Meds: Epinephrine, Benadryl, Proventil, Xopenex, Tylenal, Vicodin, Prednisone.

SmurfyShadow
Veteran Member


Date Joined Dec 2008
Total Posts : 2386
   Posted 3/11/2012 7:59 PM (GMT -6)   
You can make a soy free rice dish. I'm absolutely positive that fresh fruits and vegetables are soy free. You can make your own pasta (wheat, and otherly free). In fact, I just now started eating gluten free. I've found a wonderful Morning Glory Muffin Recipe, gluten free. I absolutely loved it. It does make a lot, I made off of one recipe a loaf of bread (just poured the muffin mix in a bread pan and kept an eye on it), and probably at least 2 dozen muffins.
As for the GERD/Acid reflux I highly live by Aloe Vera Juice. I get mine through Market America, and do the flavored ones. Straight Aloe vera juice tastes wretched. 2 ounces daily. After 1 month, symptoms improve. I had Acid Reflux so severe, I was on Prilosec, Protonix, Zantac, Nexium plus I went through a Big Bottle of Rollaids WEEKLY. I decided on a dare, to stop medication for it, and just do the rollaids with the Aloe Vera juice. With Aloe vera juice, I now have no prescription medication for it, as well as Go through a big bottle of tums only every 2 months.
"The Walking Medical Mystery"

Too many Allergies / Too many RXs & DXs

A Rare Gem for Doctors and Guinee Pig
~Medical Caregiver and Doctors Worse Nightmare~

MissLadybug
Regular Member


Date Joined Oct 2008
Total Posts : 261
   Posted 3/12/2012 7:18 AM (GMT -6)   
Thank you both for the replies. I will definitely have to look into this! :) I will post again when I get my results for the Celiacs. Hope you are both feeling well!

-Lupie Brittanee
*Lupie Britt*- Epilepsy Dx: 2003 & UCTD w/SLE features Dx: 2009 SLE/Lupus Dx: May 12th 2011--Current Meds:Plaquenil-200mg 2x/day, Prednisone-1mgs taper 1mg every 4 wks, Keppra-750mg 2x/day, Daily Vitamin- 1 pill/day, Folic Acid- 1mg 1x/day, Protonix 40mg 1x/day,Vit. D 800IU's 1x/day, Lyrica 50mgs 1x/day, Flonase 50mcg 2 sprays each 1x/day.

*Lord_Walters_Lady*
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