I have been to the cardiologist numerous times and had a monitor etc too but it didn't show anything. So whatever palpitations and everything I was feeling didn't show up or maybe it was the hospital(I like in a small town and sometimes local drs don't seem to know what they're doing!...Just like my lupus wasn't diagnosed here either they kept saying I was fine). Anyhow, I have Orthostatic Hypotension and I get dizzy when I stand up a lot, it can be a mild dizziness/burning in my head to severe where i'm starting to black out and everything gets so weak i fall over, plus I have the livedo reticularis, raynauds, IBS, occasional low blood sugars, a low blood pressure to start with(101/60 usually)and sometimes out of nowhere I will get shakey and feel my heart rate quicken and it will stay like that for hours and then go away again. Before I was on a lot of meds for lupus it would go anywhere from 80-200(the higher end if i was moving). The other day before I went to the ER before I left the house it was at 100 but by the time I got to the ER my bp was elevated to 135/80 and my heart rate was 75.
I was put through a tilt table test because I also passed out randomly in the mall one day for no reason. They don't know why and the tilt table test was negative. So sometimes my body works and sometimes it doesn't, I don't know. This is a really odd and difficult thing to deal with.
I have also had 3 seizures in my lifetime which they will not connect with lupus. I do not know why but everything I have points to CNS lupus because I have the seizures(CNS), the POTS syndrome stuff(ANS)and the neuropathy that has spread(PNS)...SO....it's an ongoing process since 2008 and I hope that you get answers quicker than I have. I've probably had more happen with this than I can think of right now(sorry brain fog!)but I do have a website you can look at if you haven't already....
P.S. I was in the ER the other night due to symptoms and for the same thing back in 2009 only it was worse...check out the post and see if they are symptoms you have had as well! Good luck and God Bless
*Lupie Britt*- Epilepsy Dx: 2003 & UCTD w/SLE features Dx: 2009 SLE/Lupus Dx: May 12th 2011--Current Meds:Plaquenil-200mg 2x/day, Prednisone-1mgs taper 1mg every 4 wks, Keppra-750mg 2x/day, Daily Vitamin- 1 pill/day, Folic Acid- 1mg 1x/day, Protonix 40mg 1x/day,Vit. D 800IU's 1x/day, Lyrica 50mgs 1x/day, Flonase 50mcg 2 sprays each 1x/day.