Feeling really bad and having chronic joint pain

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feeling down in memphis
New Member


Date Joined Mar 2012
Total Posts : 1
   Posted 3/18/2012 12:38 PM (GMT -6)   
cry  I was recently diagnosed with Systematic Lupus (4 mos ago) in addition to Crohn's Disease.  I have suffered from Crohn's for nearly 12 years.  I have had a really rough ride with Crohns.  I have been hospitalized several times with 'Flare Ups' and because I had been taking predinisone to treat Crohn's I developed another condition called AVASCULAR NECROSIS in both my hips which required me to have both my hips replaced (OUCH).  Now, I have found out that I have Lupus and a lot of my symptoms seem to overlap with my Crohn's symptoms.  When I don't feel well and I am in discomfort, I can no longer distinguish between Crohns symptoms and Lupus symptoms. I am miserable and really don't know what to do. It has greatly affected the quality of my life being that I am still fairly young. I work; however, when I don't goto work I am at home laying in bed.  I don't want to sleep my life away.  I would love to find a good support group in the Memphis area that I can goto.  I think that discussing my problems with people who are going through the same hardships would be very theraputic and healing.  Any suggestions for support groups in the Memphis area?????

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 3/18/2012 3:15 PM (GMT -6)   
Go to Lupus.org website and find the listing of local Lupus support groups in your area.

Are you able to take plaquenil for yuor lupus? It helps with the pains.
Joy

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 3/18/2012 3:20 PM (GMT -6)   
I was on earlier and was going to suggest what Joy said above, but the website for the Memphis group seems to be either gone or broken.

Call your rheumies office and ask about groups -- or if you don't have a rheumy just call any rheumy office.

And you can also call local hospitals as well as go thru your Crohns Drs for leads.
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING-LUPUS & LUPUS-RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde

msnova74
Regular Member


Date Joined Nov 2011
Total Posts : 65
   Posted 3/20/2012 7:59 AM (GMT -6)   
Memphis,

I liver near you (just south actually) Baptist East has some support groups, however it is hit or miss on attendance.

Hope this helps
Fibromyalgia, MCTD, CMPS, and many other letters of the alphabet

Marlaflyby
New Member


Date Joined Apr 2012
Total Posts : 1
   Posted 4/14/2012 6:38 PM (GMT -6)   
Found that most of the support programs in Memphis have fizzled out. Found exceptional care at The Fatigue Clinic and they were discussing starting a new support group if there is enough interest.
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