How do you cop with Lupus

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iwantmylifeback
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Date Joined Mar 2012
Total Posts : 1
   Posted 3/20/2012 8:46 PM (GMT -6)   
I was told several yrs ago that i carried the gene for lupus and that it may eventually come out. Well it did this past yr. Now i have scares headaches really bad, my whole body aches most of the time and now i have started to get tingling in my legs and feet and hands. I'm on plaquenil and prednisone and i'm doing a trail drug now if i barely bump my arm my skin bust open and starts to bleed. Now i have noticed that i'm getting more and more facial hair and i'm a female. I am having a very hard time with this. Please help me to understand more about this disease. smhair

Lynnwood
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Date Joined May 2005
Total Posts : 7720
   Posted 3/20/2012 9:00 PM (GMT -6)   
Prednisone is probably what is causing the increase in facial hair. Once I didn't need the prednisone any more, and was off for about a year, the hair started fading away.

But I would not have stopped the prednisone for that reason -- it helped control my random inflammation, hot/cold flashes, and that horrid whole-body fatigue/ache.

Some of the meds do make it difficult to clot, and sometimes prednisone can make the skin thin.

I don't know what trial drug you're on, but most of us find relief with either Imuran, Cellcept, or MTX -- although there is no way to know which will work for a particular person, it's trial-n-error.

It sounds as though you feel you are getting worse rather than better -- have you taken your concerns to your rheumotologist? They should be able to help you understand your particular manifestation of the disease - we can only generalize here.

Hope you feel better soon,
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING-LUPUS & LUPUS-RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 3/21/2012 4:32 PM (GMT -6)   
I second that opinion. Go talk to your doctor about the thin skin issues.
Joy
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