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Regular Member

Date Joined Feb 2005
Total Posts : 25
   Posted 3/22/2012 12:57 PM (GMT -6)   
Been awhile since I have posted on this forum. I just started Benlysta infusions on Tuesday. Had some aching in arms and legs and feeling a little winded but otherwise side effects haven't been bad. I was wondering if anyone has been on Benlysta for a while and how it is working.

Veteran Member

Date Joined Jun 2006
Total Posts : 1650
   Posted 3/23/2012 3:25 AM (GMT -6)   

Hi Christi73. It's good to hear from you. I asked my rheumy about Benlysta, but he wanted to see how a few other patients reacted before he tried it on me. Hope you hear from someone soon. Love, Butterflake

Veteran Member

Date Joined Jun 2008
Total Posts : 1470
   Posted 3/23/2012 10:04 AM (GMT -6)   
Please email me. I might be able to point you in the right direction as far as people's experience with Benlysta.
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dialysis from lupus nephritis
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