Pulse Theraphy

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martiallow
New Member


Date Joined Mar 2012
Total Posts : 8
   Posted 3/22/2012 9:02 PM (GMT -6)   
hi im new to this forum, i was diagnosed with SLE last yr, and from then my rheuma advice me to take pulse theraphy for 6 months ive already done 2 and will have the next on april, I would like to know if what would be the best thing to do when having a pulse theraphy, im a bit worried about it... i just need your insights about it, Thanks! :)

Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1650
   Posted 3/23/2012 2:21 AM (GMT -6)   
Gosh Martiallow, I've never heard of pulse therapy. I just posted a response to your other question and I hope someone can help you regarding this. Once again I hope you stay with our forum even though we are mostly women. Someone is always here to give advice or simpy have a shoulder on which to cry. I've had many pity parties and vents on this forum! Love, Butterflake

aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1470
   Posted 3/23/2012 9:05 AM (GMT -6)   
I have done pulse therapy 3 times. Each time it was 1000mg of Solu Medrol 3 days in a row. Are we talking about the same drug or a different drug?
Amy
Lupus Moderater


dialysis from lupus nephritis

martiallow
New Member


Date Joined Mar 2012
Total Posts : 8
   Posted 3/27/2012 1:29 AM (GMT -6)   
Hi Amy i have taken Solu Medrol before when i was hospitalized and now im taking Cyclophosphamide. which will last for 6 months and after that every 3 months,, i would like to know if you have any insight about this...im just too curious because from what i have heard its also a chemotheraphy... thanks in advance... - martiallow

aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1470
   Posted 3/27/2012 10:04 AM (GMT -6)   
I did cytoxan for 11 months total. Did 8 months in a row and then 3 months a few months ago. It is used to treat chemotherapy. I had to get mine done at the cancer center of the hospital and the people I sat next to actually were also doing Cytoxan along with another chemotherapy agent. They were getting 500mg or less and I was getting 1800-2000mg each time. We get it once a month, they get it 2-3 times a month. I did loose my hair but had a lot of fun with wigs (I also got more than the normal amount for lupus nephritis)

What questions do you have about Cytoxan? I can give my personal experiences and maybe some other people can give thiers as well :)
Amy
Lupus Moderater


dialysis from lupus nephritis

martiallow
New Member


Date Joined Mar 2012
Total Posts : 8
   Posted 3/27/2012 8:16 PM (GMT -6)   
Hi Amy good day!, so Cyclophosphamide is also called Cytoxan?..from what i have remebered im taking 1000mg,,,for once a month, im taking my 3rd one this april 3, im just taking it at the clinic sat there for 4hrs..so far i havent experience side effects like vomiting and hair loss. If you don't mind me asking what are the long term side effects of this drug? Hope others can share there experience about this. Thanks - Martiallow

aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1470
   Posted 3/28/2012 9:24 AM (GMT -6)   
Well good news, I have had no long term side effects. I do know my nephrologist told me that it could possibly make me sterile and cause premature menopause. To help protect my ovaries I got a shot once a month, usually 2 weeks before my infusion. It did put me in medicial menopause. My only complaint was the terrible night sweats. As soon as I got off of Cytoxan, my hair grew back and no issues. the 3 months therapy I had was very low dose so I had no side effects. not even nausea!

But if you do develop any nausea, it might be a good idea to have zofran handy. What they gave me for nausea and it was easy to dissolve under the tongue :)
Amy
Lupus Moderater


dialysis from lupus nephritis
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