Gone awhile in "Fatigue-ville"! Anyone have ideas to help?!

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AngelinaATF
Regular Member


Date Joined Jan 2012
Total Posts : 135
   Posted 4/4/2012 7:20 PM (GMT -6)   
Hi all! I've been on a fatigue vacay! (Hardly!)
Just started back on Vitamin B12 shots & hope that increases my energy! Any other suggestions bc I'm all ears!
Good thing: my blood"markers"finally coming back negative for inflammation (yea!) But still positive ANA. Yet..it's good bc have been taken off 2of 3 immune-suppressants! Now only taking Pred & have dose down to 5 Mg (this is great for me! Was up to 60 not long ago!)
also, I have been getting into meditation, mindfulness /consciousness & loving it - except fatigue has been interrupting my doing so the last several days! Need help/advice! I'm even trying different oral vitamins - a feat for me bc they cause severe nausea for me! Hope everyone well & enjoying this glorious Spring! Love to you & hugs too! Ang tongue
Angelina.
age 41, Mom of 2 great kids (10 & 7), Diagnosed in 2007
MCTD(LUPUS), RAYNAUDS, FIBROMYALGIA, L4L5 disc herniation, fracture in L3 fro EPIDURAL in childbirth
Meds: Prednisone, Nifedipine, estropipate, cyclobenzaprine, Cymbalta, sulfasalazine, gabapentin, hydrocod, fentanyl patch, methotrexate - MTX (on hold), clonaxepam (sleep), vit D, PRILOSEC, Transderm Scopalamine, Vit Bcomplex

oreo11
Regular Member


Date Joined Feb 2011
Total Posts : 399
   Posted 4/4/2012 7:39 PM (GMT -6)   
Hi Angelina,
 
      Fatigue is a huge part of my life right now, especially with the lowering of my Prednisone.  My body LOVES Prednisone, but my doctor and I are weaning me off so I can get ready to try another medication.  I am also impacted by my job (I teach), which has both physical and mental stressors.  When I am really flattened by fatigue, I do my Tai Chi routine ( a gentle one), which helps me both physically and emotionally.  It also seems to give me an energy boost.  I found a great class where I live that was just for people like me who were dealing with arthritis and other ailments.  I have been an active participant for several years and it really seems to help.  What I appreciate about Tai Chi is that it brings the concept of mindfulness to the forefront of the psyche.  It is both healing and restorative.
 
Oreo

AngelinaATF
Regular Member


Date Joined Jan 2012
Total Posts : 135
   Posted 4/4/2012 7:53 PM (GMT -6)   
Thank you oreo! I've been looking into everything from Jin Shin Jyutsu to Reiki to whatever else I can find! Tai Chi isn't one I had come across yet! The one problem I've been facing is that I'm having a hard time finding any of these things in Fargo, North Dakota where we live (it's not the most culturally diverse place - we moved here 4 yrs ago but it's a nice community ...although the cold is killing me!). But I will look into Tai Chi & if nothing else get a DVD on amazon! :)
Angelina.
age 41, Mom of 2 great kids (10 & 7), Diagnosed in 2007
MCTD(LUPUS), RAYNAUDS, FIBROMYALGIA, L4L5 disc herniation, fracture in L3 fro EPIDURAL in childbirth
Meds: Prednisone, Nifedipine, estropipate, cyclobenzaprine, Cymbalta, sulfasalazine, gabapentin, hydrocod, fentanyl patch, methotrexate - MTX (on hold), clonaxepam (sleep), vit D, PRILOSEC, Transderm Scopalamine, Vit Bcomplex

oreo11
Regular Member


Date Joined Feb 2011
Total Posts : 399
   Posted 4/5/2012 7:12 PM (GMT -6)   
Definitely go for the DVD.  There are some really good ones out there.
 
Oreo

Angelina09
Regular Member


Date Joined Apr 2012
Total Posts : 20
   Posted 5/2/2012 12:54 PM (GMT -6)   
The best thing I have found for fatigue is:
 
Granular Bee Pollen,  All nautural vitamines - fast absorbtion
 
B-12,  Fish oil,  multi,  Calcium,  and even better than
 
that...    JUICING veggies and making smoothies from
 
fruits.
 
You will have no more fatigue.  i feel great and it works.
 
Have you ever watched the DVD "Fat, sick, and nearly dead?"
 
It is about 2 men who have beaten thier auto immune disease.
 
Buy it.  Its a true story.  :-)
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