UPDATE: Rheumy appt

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New2Lupus2012
New Member


Date Joined Mar 2012
Total Posts : 6
   Posted 4/5/2012 7:43 PM (GMT -6)   
Okay, so I had a rheumy appt on 3/26. I was a bit taken back at his bedside manner. I do understand he is supposed to be a leader in his field and people come from all over to see him.

But I asked him to explain what my positive ANA of 640 meant. His response "that is the least of your worries."

Okay.

So, he proceeds to tell me I have bad arthritis and need new knees and need to lose weight. Okay (LOL).

Once I asked again about the positive ANA test, he said "one is false positive."

Okay. Still have no answers.

He said he didn't think I had lupus. But what was he basing that on? I could not tell you. Even with the sun sensitivity (to which he said for me to wear a sun hat and do not go outside without sun screen)

the rashes, he said I needed to see a Dermatologist when it was active and possibly have it biopsied. Okay!!

So, he ran a tons of test, (5 viles of blood) and I go back on May 17th.

I still know nothing. :(

Frustrated, pissed off, mad, sad, glad, and everything in between!!!

Thanks for letting me vent.
Ciji

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 4/5/2012 8:04 PM (GMT -6)   
I understand...
I went to my rhuemy with a list of odd symptoms. He said many of the symptoms were not related to lupus and that I needed to discuss those with my PCP.
He seemed mainly focused on my joint pains and my labs from December (which he said was good).
Joy

New2Lupus2012
New Member


Date Joined Mar 2012
Total Posts : 6
   Posted 4/5/2012 9:16 PM (GMT -6)   
joy did they eventually diagnose you? If so, what was the diagnosis?

C

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 4/6/2012 3:47 PM (GMT -6)   
I do have moderate SLE diagnosis. I was diagnosed last June.
The list was some things that had affected me since I last saw him in December.
Joy
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