back from hospital- again

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Butterflake
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Date Joined Jun 2006
Total Posts : 1650
   Posted 4/6/2012 3:23 AM (GMT -6)   
Hi Everyone. If you have a memory you may recall that I was in hospital March 9-13 with pneuImonia. During that time I had multiple bags of antibiotics hanging at one time (caused a rash) and my body pumped with saline to keep my blood pressure up. Any WBC over 10 is very significant for me and I don't run fevers so I was discharged with my WBC at 5.8. Also my creatinine was 1.9 so I followed up with my internist as instructed. He asked me to is an infectious disease (ID) doc cause my WBC was back over 12. The ID doc admitted me back into ICU on March 23 where I again developed shaking riggors, rec'd enough saline to drop my hemoglobin and was diagnosed with septic shock. This time they kept the antibiotics to 2 at a time, but also placed me on an antiprotozoal and 300mg per day of prednisone in case this was acute lupus pulmonitis. I had a bronchial lavage in an effort to obtain a diagnosis and was discharged a week ago. As an outpatient I had an endoscopy to rule out aspiration pneumonia. Once again I'm very weak, but I sure do lots better at home. The docs dropped my prednisone to 30mg prior to my release and my rheumy has me tapering 5mg every 3 weeks.
I was a runner for 20 years and always thought my lungs would remain in great shape. That's what I get for thinking too 'cause my brain fog is off the charts. Any positive energy and/or prayers will be greatly appreciated! Love, Butterflake    

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 4/6/2012 6:58 AM (GMT -6)   
Goodness! I am so sorry to hear what a rough time you are having and will certainly be sending energy and prayers your direction.
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING-LUPUS & LUPUS-RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde

aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1470
   Posted 4/6/2012 9:23 AM (GMT -6)   
Oh bless your heart butterflake. You have had such a rough time. I will continue to pray for you and hope that you will be on the mend. Hugs.
Amy
Lupus Moderater


dialysis from lupus nephritis

lucysgd
Veteran Member


Date Joined Jun 2008
Total Posts : 675
   Posted 4/6/2012 10:05 AM (GMT -6)   
So sorry, Butterflake - what an awful time you're having!  Will definitely keep you in prayer and positive thoughts - hope just being home boosts your healing power. 
 
Lucy

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 4/6/2012 3:34 PM (GMT -6)   
I hope you feel better soon and you don't have to go back in anytime soon.
Joy

FW
Regular Member


Date Joined May 2007
Total Posts : 482
   Posted 4/6/2012 4:21 PM (GMT -6)   
Oh, I am so sorry to hear this. You will be in my prayers for a speedy recovery!
Take care, Fran

Dx: Lupus, sjogren's, celiac, severe allergies.
Daily Meds: Plaquenil, Zyrtec. Aciphex, Nasacort, Prozac, Ambien CR, CellCept, Zantac, Bactrim
Daily Supplements: Calcium, B-100 Complex, Daily Vitamins.
As Needed Meds: Epinephrine, Benadryl, Proventil, Xopenex, Tylenal, Vicodin, Prednisone.

Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1650
   Posted 4/6/2012 8:19 PM (GMT -6)   
Thanks so much for the energy & prayers. It sure helps to feel y'all care. I'm also happy to be home with my Beloved BF, 2 cats, dog, 2 fancy guinea pigs and a finch that has lived so long past his life expectancy we call him Skank or Zomboid. Currently I have one good day followed by one bad, but it sure beats the #%*$ out of being in hospital. Thanks again Everyone. Love, Butterflake aka Donna

NanaBee
Veteran Member


Date Joined Jun 2005
Total Posts : 541
   Posted 4/9/2012 10:56 AM (GMT -6)   
Wow, Butterflake. You have been through a lot. I hope you are getting stronger and feeling better every day.

Take care,
Mary Ann

Weleetka
Regular Member


Date Joined Oct 2007
Total Posts : 185
   Posted 4/9/2012 2:28 PM (GMT -6)   
Goodness... Butterflake... glad you are home... and hope you will do better soon...

Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1650
   Posted 4/16/2012 5:25 AM (GMT -6)   
Hi Everyone. Thanks again for the positive energy and prayers. I'm still sleeping lots, and get short of breath on exertion. My BF took me to my pulmonologist last week. The doc showed me my lung CT from the hospital and it looked pretty bad. Lots of interstial involvement (white lines running thru the lungs which should be black). I'll get another CT in 4 weeks. If the lines are still there we know it's lupus related. If the lines are gone we know it was bacterial and the antibiotics worked. That's it for now. Love, Butterflake

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 4/16/2012 7:59 AM (GMT -6)   
Oh, dear. Never thought I'd be praying for bacteria but it sounds like that is what is required. D-a-m-n lupus anyway.
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING-LUPUS & LUPUS-RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde
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