I am new to the board and would like to say hi to everyone! I have a question about Cellcept. I take 4,000 mg (8 a day) along with Plaquenil and about 10 other medications for Lupus, Scleroderma and Raynaud's.
I have noticed on my medication bottle it does say take the Cellcept on an empty stomach. I dont always do that though. I have noticed on here some say it doesnt matter and some say absolutely do not take it with food or other meds. My rheumy said its ok to take the meds in one big hand full at once but I didnt ask him about taking them with food. Its such a pain to take so many meds twice a day I would rather just cram it all in my mouth and gulp it down to get it over with.
I have been taking them since November 2011. I was diagnosed in October 2011 when my skin just suddenly turned hard and tight. He says I will continue to increase it and take it over another 16 months. I am not sure I can take it anymore because it already has caused me to loose close to 50 pounds within 6 months, makes me tired and sick and weak.
I have a 7 year old and 5 year old so it is very hard to cope with all this and take care of them. The only family near me is my husband and he is a great help but he has to work so I am with them alot of the time alone.
Anyway...I'm rambling on..my question was....am I taking the meds wrong because so far I am not noticing ANY improvement in my condition and all these meds make me sickly and weak and I think I look horrible with the scleroderma as it is. I feel like telling my doctor I just cant take it any more and want to stop it all.
Thanks for reading and sorry for the long post! Looking forward to any advice or opinions for I am losing hope. It gets tough some times to keep a smile on my face for my kids and is so exhausting to struggle to stay out of a depression. But I do the best I can to make everyday normal for them and pretend mama is ok.