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New Member

Date Joined Apr 2012
Total Posts : 2
   Posted 4/14/2012 12:22 AM (GMT -6)   
Hello All,
I'm brand new to this site, but have spent an hour or so reading some of the topics/threads.  Here's my deal, I'm a 42 year old African American woman with an older brother 51, that has SLE on Plaquenil (sp?). He was diagnosed at the same age I am now. 
This winter I began having strange symptoms for the first time (Raynauds Syndrome and rash on right sige of face, underneanth my eye- not butterfly) I went to my PCP back in december with a rash on the left side of my face and she thought it was cellulitus or shingles, so he prescribed an anti-biotic and valtrex to cover all bases. Well, the rash went away in a week, but it has recurred about 3 times since then, not being as bright red but brownish and a bit flaky at times.
I experienced raynauds on 2 occasions. That really freaked me out, as it wasnt that cold!   These symptoms seemed to appear around PMS.  Also, for years I have had bouts of fatigue, but attributed it to recurring sinus infections.  I also have had GERD with hiatal hernia since I was 20. Also also had pluresy once in my 20's.
I had my physical with my PCP and last month and she ran an ANA, which was positive 1:80,with an elevated SED rate of 29. My rhuematoid factor is normal, although an ex-ray showed arthritis in my left knee. I've  taken cardio kickboxing for a few years and used to run a lot and I attributed the arthritis to those activities.
My brother's symptoms are completely different than mine. He's never experienced Raynauds or rash. 
During my last menstrual period, which ended a few days ago, I had crippling fatigue, with pain at the base of my skull and stiffness in the neck. I also have killer brain fog and some dizziness. I've had these symptoms off an on for years, but again attributed them to sinusitus.
I  see a rhuematologist  for first time on 4/25..  I scheduled right away, but it took a MONTH to get in to see this woman. I need answers.  I am assuming SLE or maybe fibromyalgia? Who knows? All I know is patience isnt quite my strong suit and I just want to feel better :(.

Elite Member

Date Joined Jul 2009
Total Posts : 14475
   Posted 4/14/2012 12:58 PM (GMT -6)   
It's aggrevating to have to wait to see the rheumy. I had to wait three months to see mine the first time.
Only the Rheumy can determine if you have Lupus because lupus is systematic and it can do many different things to you.
Even after my diagnosis I experience many different symptoms in itself.
Fatigue and pain is the mainstay of lupus, but after that it's anyone's game.

New Member

Date Joined Apr 2012
Total Posts : 2
   Posted 4/15/2012 3:11 PM (GMT -6)   
Thanks for reaching out Joy.. I will give an update once I get some results..
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