I'm brand new to this site, but have spent an hour or so reading some of the topics/threads. Here's my deal, I'm a 42 year old African American woman with an older brother 51, that has SLE on Plaquenil (sp?). He was diagnosed at the same age I am now.
This winter I began having strange symptoms for the first time (Raynauds Syndrome and rash on right sige of face, underneanth my eye- not butterfly) I went to my PCP back in december with a rash on the left side of my face and she thought it was cellulitus or shingles, so he prescribed an anti-biotic and valtrex to cover all bases. Well, the rash went away in a week, but it has recurred about 3 times since then, not being as bright red but brownish and a bit flaky at times.
I experienced raynauds on 2 occasions. That really freaked me out, as it wasnt that cold! These symptoms seemed to appear around PMS. Also, for years I have had bouts of fatigue, but attributed it to recurring sinus infections. I also have had GERD with hiatal hernia since I was 20. Also also had pluresy once in my 20's.
I had my physical with my PCP and last month and she ran an ANA, which was positive 1:80,with an elevated SED rate of 29. My rhuematoid factor is normal, although an ex-ray showed arthritis in my left knee. I've taken cardio kickboxing for a few years and used to run a lot and I attributed the arthritis to those activities.
My brother's symptoms are completely different than mine. He's never experienced Raynauds or rash.
During my last menstrual period, which ended a few days ago, I had crippling fatigue, with pain at the base of my skull and stiffness in the neck. I also have killer brain fog and some dizziness. I've had these symptoms off an on for years, but again attributed them to sinusitus.
I see a rhuematologist for first time on 4/25.. I scheduled right away, but it took a MONTH to get in to see this woman. I need answers. I am assuming SLE or maybe fibromyalgia? Who knows? All I know is patience isnt quite my strong suit and I just want to feel better :(.