Positive ANA and more

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

cc1979
New Member


Date Joined Apr 2012
Total Posts : 4
   Posted 4/19/2012 10:27 AM (GMT -6)   
Hey everyone. I am a 32 yr old female. I had a positive ANA test in November of 2010. That is all that my doctor told me. The reason they gave me the test was because of intense pain in my joints, problems sleeping, bone deterioration, rash on my face, repeat infections of all kinds (basically staying sick) and repeat kidney infections. Also my blood pressure literally gets so low, they can't get it to read on the machine. And my digits are so blue, they are black most of the time. After having my test come back positive, my doctor said that she is not saying that I have lupus, but that I will continue to get worse and worse if I do have it. She has wrote on my chart that I have "myalgia", IBS, bone deteriation, GERD, Anxiety and other depression issues, and probably thyroid disease that hasnt shown itself yet (because my sister has extremely bad thyroid).
I am continuing to get worse. I am having hard time using my hands now. They are constantly swelling (i.e. I cant hold a garden hose for more than 5-10 minutes without the pain being intolerable), my shoulders both hurt constantly but the left one has something seriously wrong with it, I went to see the dentist last year and he told me I have the worst case of TMJ he has ever seen and that there isnt even enough bone to try surgery to fix it  and also that my mouth is not producing the right amount of saliva and if i just hit a knuckle or toe with the power that usually bruises most people, mine seem to break. Also, had to go to the eye doctor, had no eye changes in ten years, but all of a sudden had to have my scrpit changed and he said that I have a condition with my eyes that causes me not to make tears (but I've never had that before)I have slipped and bulging discs in my back. I get migraines that last for days sometimes and I always feel so tired. I have days when I feel ok, but they are getting fewer and more spread apart. And my hair is falling out...in bunches, my hubby is complaining about how much is in the tub drain after I shower.....It used to be so thick, now it is limp and thin..:(
To make things worse, I literally feel like I am getting more "stupid" for lack of a better word. I used to be the smartest kid in school, when I was a kid. Now I cant even concentrate on the person talking in front of me. I cant seem to keep a train of thought and even have caught myself going the wrong way when I am driving to the store (like turning left when I should have turned right). I tried to take some college classes earlier in the year and couldnt remember any of the information I was reading, which broke my heart.
I am frustrated and dont even want to see the doctor anymore. I know that something is wrong with me, especially now. Two days ago, I had to call someoen to take me to the hospital because I thought that I might die in front of my small children. I was having chest pain and my heart felt like it was beating out of my chest. (one minute I was fine, the next I wasnt...and no I wasnt upset when the episode happened.) At the hospital, they did an EKG, and told me that I was having PVCs.....this isnt the first time that I have felt this phenomenon..it was just the first time I couldnt make it stop...It lasted for almost an hour. And was accompanied my numbness in my face and pain in the back of my head.
My family is all worried about me and I dont want them to be. I want to be fine. I do not want this to be lupus, but it seems like it may be. I was wondering if any of you out there had had any problems like I have described.
The only meds my Dr would give me were Zoloft for anxiety and Etodolac to help with joint pain. Neither one works. And I can not take pain pills because I am allergic to so many.
I dont know if I should see a different doctor. Or wait until something worse goes wrong, which is kinda what she wants to do.

Post Edited (cc1979) : 4/19/2012 10:37:53 AM (GMT-6)


MissinMySurfboard
New Member


Date Joined Apr 2012
Total Posts : 4
   Posted 4/19/2012 11:22 AM (GMT -6)   
Wow. Sounds like some similar symptoms I deal with but yours seem much worse. Are you seeing a rheumatologist? I hate the plan of waiting for things to get worse but seems like you have passed that point. New doctor asap!

MissinMySurfboard
New Member


Date Joined Apr 2012
Total Posts : 4
   Posted 4/19/2012 11:24 AM (GMT -6)   
How are u with the sun?

cc1979
New Member


Date Joined Apr 2012
Total Posts : 4
   Posted 4/19/2012 11:27 AM (GMT -6)   
the rash on my face gets much worse when i am outside for extended periods of time...especially summer, when i actually get extremely tired from long periods in the sun, even lightheaded.....and forget tanning beds.....one time i laid and had quarter size blisters all over, very painful

cc1979
New Member


Date Joined Apr 2012
Total Posts : 4
   Posted 4/19/2012 11:28 AM (GMT -6)   
I havent seen a rheumatlogoist...i have just been trying to listen to my doctor....but at the point where i think maybe she isnt trying to help me, or just doesnt know what to do....technically she is just a PA

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 4/19/2012 12:56 PM (GMT -6)   
You really need to see a rheumotologist for treatment. You can feel a LOT better than this!!! A general PA has only slightly more knowledge, if any, than you do about this. The expert in Lupus would be the rhuemy. Please make an appointment soon before you have permanent damage.
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING-LUPUS & LUPUS-RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde

cc1979
New Member


Date Joined Apr 2012
Total Posts : 4
   Posted 4/19/2012 2:16 PM (GMT -6)   
thank you lynnwood

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 4/19/2012 4:23 PM (GMT -6)   
I agree with Lynnwood go see another doctor definately a rhuemy!
I wouldn't trust a PA beyond a very basic care.
Joy
New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, June 19, 2018 6:24 PM (GMT -6)
There are a total of 2,973,389 posts in 326,088 threads.
View Active Threads


Who's Online
This forum has 160962 registered members. Please welcome our newest member, Gladioli66.
441 Guest(s), 7 Registered Member(s) are currently online.  Details
Sovereignty, 81GyGuy, island time, Michael_T, SeanL88, Serenity Now, C_G_K