It's been a little while since I posted here last. To recap; I'm a 25 year old female. After almost 6 months of tests, repeat tests, and mris, my diagnosis has finally been narrowed down to an "auto-immune process." And further narrowed to lupus or sjorgen's syndrome. I started seeing a rheumy last month in Boston who has narrowed things down to my repeat ANA testing coming back positive.
MY inital ANA titer was only 1:160 with a speckled pattern. My RF was a tad high, and my SSA-RO was grossly high. Hence the referral. They tested me again in Boston as they claimed to have a more specific testing technique done by hand, blahblah. My ANA titer came back at 1:1280 with a speckled & homogeneous pattern. I emailed my doctor when the results came back to ask his opinion based on that. . His response in short was that they focus more on the ELISA rather than the number and pattern. And that since ONLY the SSA was positive, it's not indictive of lupus and my symptoms aren't "specific enough."
To me, my symptoms are quite specific and have been all along.
headaches, EXTREME fatigue, constant joint pain & muscle pain, nausea, depression, anxiety, difficulty concentrating, some memory loss, dry skin/scalp especially, I do have a SLIGHT malar butterfly rash, but everytime i see this doctor, it's faded down and not as evident I suppose, I've recently gotten a few photos to show him otherwise. Photosensitivity, some joint swelling, some mouth sores.
I have the Schirmer test scheduled for the 10th to measure my tear production. I have never noticed an issue with dry eyes or dry mouth. So I personally don't think I have Sjorgen's. I'm not sure what to do. I'm feeling exasperated. I trust that the doctor knows what he's doing, but I'm curious as to why he thinks the numbers/pattern don't matter in the diagnosis and why he seems fairly certain my symptoms are not "specific" to lupus. Any feedback would be greatly appreciated.
OH; he did start me on Plaquenil about a month ago.. No imporvement as of yet.