Symptoms...Prednisone taper vs lupus???

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Cuphalffull
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Date Joined May 2012
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   Posted 5/12/2012 11:18 AM (GMT -6)   
Recently diagnosed w lupus by Rheum (2 months ago). Prednisone and plaquenil. Now on pred wean - how can I tell if symptoms (extreme fatigue, joint pain and swelling) are from lupus or from taper?! Thx

Lynnwood
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Date Joined May 2005
Total Posts : 7720
   Posted 5/12/2012 12:08 PM (GMT -6)   
When you taper off of prednisone, if your lupus symptoms are still present they will reappear. While this may look like a result of the taper, it's an illusion -- the prednisone has been controlling the symptoms and now it is not.
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING-LUPUS & LUPUS-RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde

Cuphalffull
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Date Joined May 2012
Total Posts : 4
   Posted 5/12/2012 12:19 PM (GMT -6)   
Thank you. Does that mean I should talk to rheum about increasing prednisone or stop taper? (really hating prednisone side effects). Will I trigger flare by "waiting to see"? Sorry if I sound clueless, I am just trying to figure it all out still.

Lynnwood
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Date Joined May 2005
Total Posts : 7720
   Posted 5/12/2012 12:45 PM (GMT -6)   
Simply tell your doctor about your medication changes and the symptoms you are having.

The decision of where to head next relies not only on the information you have given here, but on your complete medical status and circumstances. Only your doctor is qualified to answer your question.

There are many other medications that can be used - try not to get ahead of your doctor by demanding a certain treatment. I find it works kinda' like telling someone not to think of an elephant -- then that's all they can think of. If you mention a particular drug or something, it might obscure the doctors thinking of something that might be of more help to you.

Note that sudden changes to prednisone dosages can be very dangerous -- as in heart-stopping dangerous. Please follow your doctors suggestions. Usually when undergoing a taper they say if it's too troublesome go back up to the immediate previous dosage....but you may be an exception, so verify with your doctor!
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING-LUPUS & LUPUS-RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde

Cuphalffull
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Date Joined May 2012
Total Posts : 4
   Posted 5/12/2012 2:20 PM (GMT -6)   
I appreciate your thoughtful response. I wouldnt make any medication changes without consulting my dr. I am hanging tight and waiting- if my symptoms subside then they are due to pred withdrawl/ if they start getting worse- I will call/ assume could be flare. I think not knowing what will happen next is the toughest part for me. I'm still just adjusting to my diagnosis (physically and emotionally). Thanks again for your support.

couchtater
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Date Joined Jul 2009
Total Posts : 14475
   Posted 5/12/2012 3:21 PM (GMT -6)   
Cuphalffull,
I understand where you're at. I was diagnosed last April and I thought I would never feel better. It takes about 4-6 months before the plaquenil kicks in fully.
I still have my flares but it's not as bad as it was in the beginning. Are you on any NSAIDs?
I was taking meloxicam and was recently switched to Nabutone (sp?).

A lupus diagnosis is not the end of the world just tilting it to the side a little.
Joy

Cuphalffull
New Member


Date Joined May 2012
Total Posts : 4
   Posted 5/13/2012 12:19 PM (GMT -6)   
I am on plaquenil and prednisone. We had stopped the NSAIDs before decreasing prednisone. I am hoping that the plaquenil is starting to work. Thanks again for the support.
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