Thanks for the responses. Ladybug, you sound a lot like me. Mine started in my upper thighs also. It has spread into my hands up to the middle of my forearms. It usually gets worse in the evening as well or when I'm done "over doing" it. Which in my opinion doesn't take much!! I failed to mention I also have 3 cervical spine fusions and my MRI showed 2 more bulged discs. My neurologist said that there was no nerve impingement from that though. The Neurontin has helped with the nerve pain throughout the rest of my body but doesn't seem to be doing anything for this. The pain is like when your run your hands under warm water when their freezing cold. Burning, pins and needles... Please let me know what the endocrinologist says. I would love some answers!!
SLE Lupus, Epilepsy, Spinal Stenosis
400mg Plaquenil, 1500mg Keppra, 900mg Neurontin, 10mg Medrol, , 2000mg Vitamin D, 1200mg Calcium, Ambiem, Vicodin as needed.
Make the best of every day.. You never know what tomorrow will bring you!