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Regular Member

Date Joined Jan 2012
Total Posts : 135
   Posted 5/23/2012 12:20 PM (GMT -6)   
Hello fellow healers,
I am so happy to tell you that I have gone into complete remission and Ive even stopped ALL pain meds, immune suppressants  - except small taper down dose of pred, etc!  How, u ask? I am not sure..of course we can never be 100% sure... but my thought is this:  A few wks ago I was in bad shape...& for months I had been reading about different healing methods - Eastern, Chinese, Russian, you name it, I have an entire library of books now.  But in reading these books, I saw a common denominator:  Each one advocated for ones soul to become part of the healing process.  For yrs I have been begging that something/one take away my pain but I realized I was asking for me, for my personal benefit. I mean, of course I wanted to do so to be a better mother etc ...but it hit me like a brick that perhaps I was going about things all wrong!  I then asked that take away my pain and misery so that I could serve human kind in any way necessary.  And I began to meditate, try Tai Chi, Yoga.   I read all of Dr. Sha's books, an MD and Eastern trained chinese physician.  And I swear - no kidding - i woke up one recent morning and for the first time in yrs and yrs I felt good.  I tapered off all the pain meds (with my physcians blessing) and I was in shock to not have pain! (I had been unable to get below 50 mcg of fentanyl patches for 6+ yrs! In fact 3 yrs ago I was taking 100mcg every 2 days!)  This is truly a miracle to me honestly.  I have no idea what my "job to serve" is yet but I would love to write books and help people!
I am certainly not advocating anyone stop meds - no way could I have survived without them these last several yrs.  But I do urge you to look within yourself, read, educate yourself, and believe anything is possible!  I love you all with all my heart and soul!
Thank you Thank you Thank you! 
age 41, Mom of 2 great kids (10 & 8), Diagnosed in 2007
MCTD(LUPUS), RAYNAUDS, FIBROMYALGIA, L4L5 disc herniation, fracture in L3 fro EPIDURAL in childbirth
Meds: Pred taper, Nifedipine, estrogen, Cymbalta, hydrocod (NO MORE!), fentanyl patch (NO MORE!), methotrexate - MTX (on hold), clonaxepam (sleep...maybe off soon!), vit D, PRILOSEC, Vit B12 shots.

Veteran Member

Date Joined Jun 2008
Total Posts : 1470
   Posted 5/24/2012 6:55 AM (GMT -6)   
Just wanted to say CONGRATS!! It is so nice to always read things like this. thank you for taking time to remind us it is possible for any of us dear!
Lupus Moderater

dialysis from lupus nephritis

Regular Member

Date Joined Oct 2008
Total Posts : 261
   Posted 5/24/2012 11:56 AM (GMT -6)   
:) .....I think the smile says it all don't you? ;)......(((GOD IS GOOD))).........And so is faith! :)

P.S. Quick question for you though, are you sun/light/photosensitive and get the malar/butterfly rash? If so, is it severe?
*LadyBug*- Epilepsy Dx: 2003 & UCTD w/SLE features Dx: 2009 SLE/Lupus Dx: May 12th 2011--Current Meds:
Plaquenil-200mg 2x/day
Prednisone-7.5mg 1x/day
Methotrexate- 2.5mg 4 pills 1x/week
Keppra-750mg 2x/day
Daily Vitamin-1x/day
Folic Acid- 1mg 1x/day
Protonix 40mg 1x/day
Bentyl- 10mg 4x/day, Miralax- 17g 1x/day
Vit. D 800IU's 1x/day
Lyrica- 75mg 1x/day
Flonase 50mcg 2 sprays each 1x/day

Wanna know my story, just ask!

*Lord_Walters_Lady* <3
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