I am 28 years old, and have been experiencing joint pain(which later become joint and muscle pain) since I was 17 years old. I have had a positive ANA over the years, and protein showed up in urine once. I then went through a period of close to ten years with my insurance lapsed, and didn't see anyone. I started going back when I suffered with extreme fatigue, hair loss, mouth sores, extremely high BP, tachycardia, and recurring rashes.
Anyways, skipping ahead, the GP that saw me then said it was lupus, even brought out a medical book to show me the pictures of the rashes. I was on steriods most of the past two summers, shots and orally. I changed GPs once I got insurance as the other doc only sees patients without insurance. They have been ok but keep trying to tell me symptoms are related to anxiety and trying to treat with that. I got in to see a rheumy and he hasn't dx it as lupus but put me on plaquenil and cardiologist took me off anxiety pills saying racing pulse was not from that. I also found out I have Hashimoto's and was started on thyroid hormone last week. Had started seeing Neuro and he ran some tests said nothing showed up, and now dismisses my memory and concentration problems, (telling me flat out I don't have them) because a neuropsych said I passed tests in normal range(even though two showed up in impaired range as I have read report). Have any of you had this type of problem? Have you gotten neuropsych consult or test and was dismissed? The memory problems are worse and come and go, and when I told the neuro that, he said, there is not a condition that would cause that. I even said, maybe it was from my thyroid and he said, you'll still have problems after they sort out your thyroid.?? That it wasn't my thyroid problems. Does brain fog come and go for any of you? The attitude I got was very rude and I felt and feel very horrible, like I'm crazy or he thinks I'm lying. I mean if he doesn't believe me that's fine, but I would have appreciated a little consideration. Do you guys have this kind of thing happen frequently with docs?
Sorry message is so long, but thanks for your help.