Symptoms, ER Trip, New PCP and Endo Appt Tmrw!

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MissLadybug
Regular Member


Date Joined Oct 2008
Total Posts : 261
   Posted 6/5/2012 5:18 PM (GMT -6)   
Hello all. Last week I made a trip to the ER one night because I was having anxiety type symptoms again for the 2nd or 3rd night in a row. This time it was accompanied by a sweat and low grade temp, rash etc and a shower didn't help to calm my nerves this time. My first thought was it had something to do with my adrenals because the last time my cortisol was low I had woken from a dead sleep in anxiety/panic and after uping my prednisone dose it slowly went away.

I got to the ER around 11pm and did not leave until 4:30 that morning. My boyfriend who had to work that morning and get up at 530 stayed with me all night and we slept literally 15 minutes the whole time and nothing was accomplished. They gave me a full bag of saline and zofran for nausea and ordered some blood work. By 4:30 we had not heard from the Doctor at all about the labs or his diagnosis, etc. We even had to end up taping the IV line up so it wasn't ripped out of my hand, unhooking it and removing the IV because the drip was done and no one had come in to check on things. At that point we were both ready to go home and crawl into bed excitedly so he went and told the nurse. She came in and said "Well your labs looked okay and the dr isn't sure what caused your symptoms but he doesn't think it's the low "cortisone"..."....Um well it's not "Cortisone" first off it's "cortisol" and needless to say we said okay fine give us the discharge papers so we can go home.

I had an increase in my Lyrica dosage monday of that week from 75 to 100mg. I thought maybe that played a part in it. So after taking it for a week I dropped it back down last night to 75mg. It didn't really help. I saw my new PCP today who I like(Yay! Finally! lol)and he was able to get the lab results from the ER my bf and I never got to hear about. Apparently not only did he NOT do a cortisol, but my glucose was also somewhat elevated. He said it also appeared that my tongue had glossitis. Anyone have experience with this I've had it once before that I know of and it was due to Iron Deficiency Anemia but that was 3+ years ago. One other thing that has cropped up is Low heart rate. Another reason I tapered down on the Lyrica was because I thought it could cause a slower heart rate since it relaxes you to sleep. My heart rate has been in the 50s...52 the night before last and yesterday ran in the 50s and today at the drs office was 56/57 with a BP of 112/66. My PCP didn't seem too concerned by this since it hasn't been prolonged or accompanied by a very low bp. So, instead of ordering a cortisol, etc he said just see the Endocrinologist tomorrow and let her order the tests needed along with the cortisol so she can get a full workup done. He will see me back in 2 months.

My symptoms list I thought maybe had more to do with the adrenal issues than the Lupus but my PCP thought it was a mixture and even some anxiety thrown in there with everything going on. He gave me a script for Remeron to help me sleep. I am a little apprehensive of sleep meds because I have adverse reactions to drugs that are supposed to make me relax(aka benadryl and sudafed make me jittery and anxious.) So my symptoms still are as follows:

-Fatigue
-Weakness
-Dizziness
-Brain Fog
-Low Grade fever
-Chills
-Cold sweats
-Joint pain/ache
-Burning pain
-Tingling
-Headache
-Shakiness
-Malar rash
-Loss of Appetite
-Weight loss
-vibration sensations
-diarrhea and Constipation
-Nausea
-Abnormal Periods
-Anxiety(Knots in stomach, butterflies, etc.)
-Slow heart rate
-Palpitations


I may have forgotten some ...sorry brain fog!...lol...but that's the gist of it I guess...Just wanting to know anybody's opinion or who can relate....it's been quite a week :/ ....I will post again after my appt tomorrow! Thanks for letting me rant lol

-LadyBug
*LadyBug*- Epilepsy Dx: 2003 & UCTD w/SLE features Dx: 2009 SLE/Lupus Dx: May 12th 2011--Current Meds:
Plaquenil-200mg 2x/day
Prednisone-7.5mg 1x/day
Methotrexate- 2.5mg 4 pills 1x/week
Keppra-750mg 2x/day
Daily Vitamin-1x/day
Folic Acid- 1mg 1x/day
Protonix 40mg 1x/day
Bentyl- 10mg 4x/day, Miralax- 17g 1x/day
Vit. D 800IU's 1x/day
Lyrica- 75mg 1x/day
Flonase 50mcg 2 sprays each 1x/day

Wanna know my story, just ask!

*Lord_Walters_Lady* <3

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 6/5/2012 8:39 PM (GMT -6)   
 Some of your problems sound like me lately. Are you losing hair too?
-Fatigue   same here
-Weakness  same
-Dizziness   sometimes
-Brain Fog   often
-Low Grade fever  yep
-Cold sweats   sometimes
-Joint pain/ache  sometimes
-Burning pain     in toes, back, and hands
-Tingling      all over
-Headache    sometimes
-Shakiness     sometimes
-Malar rash    sometimes
-Loss of Appetite   often
-Weight loss      20 lbs
-vibration sensations    all over
-Constipation   stool softener is my friend
-Anxiety(Knots in stomach, butterflies, etc.) a lot lately

 

Do you have a thyroid problem too? Some of this can be part of this too.



Joy

aimsgirl16
Veteran Member


Date Joined Jun 2008
Total Posts : 1470
   Posted 6/6/2012 6:12 AM (GMT -6)   
The blood pressure and pulse is amazing! My Sister in law who is a marthon runner has that pulse and BP reading all the time. She doesnt beleive the numbers when my pulse is always over 100. LOL! I don't think hers gets over 100 even when she is running.

about the anxiety, did they give you anything to treat it? They have things you can take as needed such as ativan or things you can take every day such as buspar or xanax. I started on ativan and my anxiety eventally broke through. I now take extended release 1mg of xanax and have had no anxiety issues. Maybe something you can talk about. I had no side effects from either medication EXCEPT relief from my anxiety.
Amy
Lupus Moderater


dialysis from lupus nephritis

MissLadybug
Regular Member


Date Joined Oct 2008
Total Posts : 261
   Posted 6/6/2012 2:24 PM (GMT -6)   
Hi there.

@ Joy: I have had my thyroid checked several times and had normal results. I just saw the Endocrinologist today ...putting up a new post of that on here!

@ Amy: My heart rate finally went back to normal late afternoon yesterday but only after I had another bout of diarrhea not long after eating and it went up in the 80's! It's been pretty normal since then though. I have not ever been given the option of a daily anxiety med like the Ativan although I was given it one time while I was pregnant with my daughter because my eyes wouldn't stop twitching while they were trying to regulate my seizure meds. I couldn't sleep at all. I'm just always afraid of side effects. I was given the Remeron for sleep but it's for depression and I'm just leery of those types of meds. Thanks for the advice!

I woke up this am with a scratchy throat and it's making me cough a little...not sure if it's from taking the MTX last night or what...blah!
*LadyBug*- Epilepsy Dx: 2003 & UCTD w/SLE features Dx: 2009 SLE/Lupus Dx: May 12th 2011--Current Meds:
Plaquenil-200mg 2x/day
Prednisone-7.5mg 1x/day
Methotrexate- 2.5mg 4 pills 1x/week
Keppra-750mg 2x/day
Daily Vitamin-1x/day
Folic Acid- 1mg 1x/day
Protonix 40mg 1x/day
Bentyl- 10mg 4x/day, Miralax- 17g 1x/day
Vit. D 800IU's 1x/day
Lyrica- 75mg 1x/day
Flonase 50mcg 2 sprays each 1x/day

Wanna know my story, just ask!

*Lord_Walters_Lady* <3
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