Hi Nancy, I'm a poster on the fibro forum but I also have MCTD.
I have found that taking one day at a time really helps. Do what you can to keep your stress level down...exercising, taking time to do deep breathing and meditation helps me. Fill your day doing things you love to help distract pain. You can take some control and still enjoy life.
We are all differant when it comes to meds...initially I was on plaquenil, then on Imuran and now take methotrexate. Have been on the MTX for several years now.
Not all of us that have MCTD have all the same exact symptoms. I was diagnosed because my bloodwork was showing high levels of RNP, my fingers were swollen like sausages, had lesions and rashes that would come and go, joint pain, swelling, myositis, Raynauds, A dent in my forearm was biopsied and was shown to be scleroderma.
There are mild cases of MCTD and some that are more severe. I now have heart disease and pulmonary hypertension but still lead an active life.
Worry is something you should never waste your energy on. Either we have control over a sitituation ore we don't...if you don't let it go.
I've found life to be easier when my focus is on my blessings and having fun. Don't let some crummy autoimmune disease rule your life. Life can still be great. :) Wishing you the best!!!
Fibromyalgia, Heart Disease, Pulmonary Hypertension,
MCTD (Lupus, Scleroderma and RA)
Raynaud's, Degenerative Disc Disease, Osteoarthritis,
Osteoporosis, Hypertension and Migraines
"Where there is a will, there is a way"