Who filled out your disability forms?

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Elite Member

Date Joined Jul 2009
Total Posts : 14475
   Posted 6/12/2012 6:54 PM (GMT -6)   
I'm at a bump in the road.
I found out if I don't fill out my private disability insurance before end of August I can't apply ever. It won't carry over when my paychecks stop.
So I call up my Rheumy and ask him if he will support me on my disability claim.
mad   He said he does not sign those forms! He said I need to go to my PCP to get him to send me to a physical therapist to get assessed!
I've gone to my Rheumy more than my primary for all of my Lupus issues! He knows more of my gripes than the Primary! shakehead
A friend of mine goes to a rheumy in Atlanta who was willing to fill out the forms on her!
This is such a pain in the Booty! mad
Also I have to send my Former Employer a part of the form for them to fill out on my performance at work! They don't know that I came to work many days barely able to function for the last two years! I tried to hide it from my boss.
Okay, what's your opinion? Do I go the primary route or try to see my friend's rheumy who's a 2 1/2 hour drive away?

Elsie Mae
Regular Member

Date Joined Apr 2012
Total Posts : 32
   Posted 6/12/2012 10:18 PM (GMT -6)   
  I would go to whichever Dr will more likely guarantee you the signature and report you need for your disability insurance.  If you go to that family doctor, who hasn't seen you very often and is not as familiar with your health issues, you might want to create a brief health log outlining your daily life and how Lupus is affecting you, plus ways the Rheumatologist has been treating your various symptoms. He/she may also need to see your lab results, x-rays, etc. done by the Rheumatologist in order to better fill out the forms.   
 I would also have a talk with my employer about how Lupus challenges your daily life and employment, plus explain the purpose of the special insurance and forms you need filled out. The possible problem with going to a new Dr is that Dr could require a "new patient" exam and lab work at one appt. then discuss it with you at another appt BEFORE being willing to fill out that form for your disability insurance policy.
 Whatever you do, DO NOT ever go without active health insurance, even if you have to have a temporary COBRA plan.  If you go without active insurance and develop additional health problems that are treated then begin a new health insurance policy, there is a good chance they will NOT cover any pre-existing conditions.  This happened to us one time and my son's chronic ear infections, bronchitis, strep throat, ear infections, etc. were not insurable for months. 
 Best wishes!

Veteran Member

Date Joined May 2005
Total Posts : 7723
   Posted 6/12/2012 10:48 PM (GMT -6)   
Both my private disability and SS required lots of information from me, but only needed the diagnosis page and a 2-5 question bit about how your daily activities are limited by your Dr.

If your Rheumy hasn't diagnosed you maybe that's the issue? Sometimes being treated and being diagnosed are two different things. Have you been reporting how you feel after a regular day when you "acted as if" to the rheumy? It seems odd that a rheumy would say s/he "never" does those forms...

I think I'd ask for a complete copy of my files and take that both to your PCP and to a new rheumy.
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde

Elite Member

Date Joined Jul 2009
Total Posts : 14475
   Posted 6/13/2012 1:20 PM (GMT -6)   
I thought it was weird that he wouldn't sign them even though he's the one who gave me the Lupus diagnosis.
I've tried to discuss other lupus issues I've had with him (besides the joint pains and all over pains) and he seems to not want to deal with them. He seems to want to only treat the joints and pains. I thought he took care of the sun reactions and nerve issues too.

I'm going to create a list of my daily symptoms and carry them to my PCP. I also need to call my rheumy and have him release his findings to the PCP.

Veteran Member

Date Joined Apr 2006
Total Posts : 1344
   Posted 6/13/2012 10:31 PM (GMT -6)   
Your doctor is off base.  All of my docs....internist, both rheumies, nephrologist, physiatrist were all willing to support my claim.  1 rheumy, my internist and physiatrist all submitted letters to SSD in support of my claim.

Elite Member

Date Joined Jul 2009
Total Posts : 14475
   Posted 6/14/2012 12:55 PM (GMT -6)   
He's one of two rheumys in my area. He seems very green and wet behind the ears. I've heard bad things about the other one.

I guess I need to go to the bigger city rheumys.

Veteran Member

Date Joined Jun 2008
Total Posts : 1470
   Posted 6/14/2012 2:15 PM (GMT -6)   
My company hired an attorney for me and they took care of all that. I had to fill out one paper for them.
Lupus Moderater

dialysis from lupus nephritis
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