Your story is very much like mine -- let me try to quickly respond...
1. How quickly is this prednisone going to wear off?
The prednisone is a steroidal anti-inflammatory. It "wears off" rather quickly. 10 mg is a fairly low dose -- the body in a normal state produces (from the adrenal glands) 5-7 mg of a similar substance. (If you were diagnosed 3 years ago, have you been getting *any* treatment since then?)
2. Before this trial began, I went through about
2 weeks of what I would call "emotional distress". ... I really don't even know what the feelings were that led to my breakdowns, but I know I don't want to get that way again.
Periods of emotional overload are also very rare for me -- I have had some similar episodes -- unable to tell if they are associated with Lupus itself, exhaustion from "acting ok" when feeling like crap, relief from finally getting a dx, or whatever.
3. I would love some advice on continuing my relationship with my spouse. What is the best way for me to help her understand how I feel?
You might try giving her a copy of "The Spoon Thoery" -- It helps explain how we feel when we still look healthy. www.butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory-written-by-christine-miserandino/
Plus remember to stay in your own head and not "read her mind". If she says leaving isn't an issue, trust her.
4. What do you do to build/save up energy?
Do things in smaller and smaller bursts until you find what amount of energy you can expend without "burning out". For me, at this point in my illness (dx 2002) I am limited to 1 big event per day. If I go to the grocery store, it's the day's event. Part of this is physical but another part is stress. Lupus will create a lot of stress around things that were never, ever a tiny bit of stress previously!
5. What are the results of this trial going to tell my doctor? How do you think he is going to treat me with medicine? Is the medicine going to continue to make me feel as I have the past 10 days?
The trial is probably being used to determine if your pain is from Lupus or from Fibromyalgia – Lupus usually is better w/prednisone, Fibro often the same or worse. Is he a rheumatologist? He’ll probably decide Lupus – a baseline med is Plaquenil, an anti-malarial known to help control Lupus progression. Another med is the Prednisone, used to control the Lupus inflammation. (I was on pred for over 7 years, still on Plaq and may always be, so don’t expect a quick magic solution.) You may be treated with Imuran, Cellcept, or MTX if Prednisone can’t get things under control. Each person responds differently to these, it is trial-n-error which of these 3 might help you. Whether you continue to feel as good is totally unpredictable – Lupus is the disease of 10000 faces, and doesn’t respond the same to anyone.
Hope things continue upward!
Lynnwood, Lupus & Sjogren's ModeratorDIAGNOSING-LUPUS & LUPUS-RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde