wish this were easier

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oreo11
Regular Member


Date Joined Feb 2011
Total Posts : 399
   Posted 6/17/2012 7:56 PM (GMT -6)   
Hi All,
 
      I returned home after having spent ten days helping my parents out (dad has cancer and mom has COPD) and feeling fairly good.  The Imuran I have been on for two months seems to be working and I am tolerating it well.  So I was surprised when I got hit with a stout wave of fatigue, joint pain and lethrgy this afternoon.  I worked in the yard (made sure I was well-covered and wore my hat), but after three hours I felt the same familiar routine settling into my body.  It's hard to keep from being depressed!!!!  It's times like this when I really hate having this disease.  To make matters worse, I found out my cousin, who had Lupus, passed away three days ago.  She had a heart attack and they were unable to revive her.  So naturally, I freaked out a little.  I was in the hospital last summer for uncontrollable atrial fibrillation and so hearing how she died really got me down.  I have friends to talk to and a husband who understands what I go through, but I just feel defeated right now.  I have two more weeks of work, so that part is good.  At least I have the rest of the summer to look forward to....a time of both emotional and physical healing.  Thanks for just letting me vent!!!!
 
Laura aka Oreo

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 6/17/2012 8:56 PM (GMT -6)   
Sorry about your cousin.
Three hours? I can't handle that with full getup and sunbrella! No wonder you're suffering.

Rest and take care.
Joy

Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1650
   Posted 6/18/2012 5:05 AM (GMT -6)   
I'm so sorry to hear of your cousin Laura, but I'm glad you have the summer off to help you past this flare. Take care Honey. Love, Butterflake  aka Donna

oreo11
Regular Member


Date Joined Feb 2011
Total Posts : 399
   Posted 6/18/2012 8:33 PM (GMT -6)   
Normally I don't hang out in the sun, even fully covered, for three hours, but I have been pushing the envelop lately. I think some of it may be due to frustration and overwhelm. I usually take better care of myself!!!! I am feeling better today.....an unusually light day at work really helped. Thanks for your support!!

Laura

pbjsammich
Regular Member


Date Joined Jun 2012
Total Posts : 66
   Posted 6/21/2012 4:41 PM (GMT -6)   
Sorry for your loss.
three hours? hmmm there was a day last year I could go over 12. oh those days are but a distant memory....memory, huh? yeah, I have that lupus fog thing now.lol anyhoo, I can't even get outside in the shade without splotching up.
I think you are trying to get your frustrations out. You've had a very trying time emotionally and physically. Take it easy and take some "me time".
:-)  

Cronewinter
New Member


Date Joined Apr 2012
Total Posts : 6
   Posted 6/23/2012 11:45 AM (GMT -6)   
OMG..are you serious? Nobody told me that sun exposure if I used a heavy sunblock and hat and long sleeves was bad..forgive my ignorance I am very new to this whole game but I've been a sun lover all my life and have not understood why I've felt so much worse on the very days I felt I should feel so much better on. I've been gooping on sun block and cover ups to protect my skin and sitting out side to "help" the joint and muscle pain..could that be why I feel so much worse right now. I'm learning a lot here just today and am developing a list of questions for the Drs.

Cronewinter
New Member


Date Joined Apr 2012
Total Posts : 6
   Posted 6/23/2012 11:47 AM (GMT -6)   
Sorry, that was a super selfish response to your post and to your loss.
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