I dont know if im in the right category
My 12 yr old ENA and ANA tests came back abnormal, the dsDNA was normal. I am still waiting for other test results which is i was told can take a few weeks
Originally what brought us to to the Dr, she had a numb tongue (which lasted wks) a rash covering her body which looked like small boils, no puss etc but they were itchy. Those went away and where the bumps were its now white spots covering body, a bald spot on her head.
She's also had extreme knee pain for yrs, physio helped, we havent been for a couple weeks (physio expensive :s) and her knee is starting to hurt again
Migraines started at 9 (i dont know if its tied or just migraines)
Her skin has always been very sensitive in the sun. We have dark skin and even a day in the sun and she is so DARK! Im only saying that because a couple years ago we had to get some black spots "burned" off her back from sun damage
None of these symptoms match Lupus or any other autoimmune disorder/disease i have looked at
Its been just over a week since I have found out and needless to say it was a HORRIBLE week (only 2nd day i havent cried out of 9)
We originally got sent to a neurologist, had an EEG which was no normal, neurologist has referred us to the rheumotologist which is going to be a couple months before we get in :(
any thoughts, suggestions???