Does anyone on here have Lupus AND Crohns Disease/Ulcerative Colitis/J Pouch

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tamara.ker
Regular Member


Date Joined Jan 2006
Total Posts : 146
   Posted 6/18/2012 5:40 AM (GMT -6)   
Hi,
 
I will most probably recieve a Lupus diagnosis very soon.  I also have a J Pouch as a result of toxic megacolon from Ulcerative Coliis.  My JPouch has failed however that's another story.  I know that some of the medication for Lupus may impact Inflammatory Bowel Disease.  So I'm wondering what other medications might be available for someone like me?
 
Thanks,
 
Tamara

oreo11
Regular Member


Date Joined Feb 2011
Total Posts : 399
   Posted 6/18/2012 9:40 PM (GMT -6)   
When I started this journey with Lupus, my doctor first perscribed NSAIDs, which wrecked havoc with my GI tract. I have been on Plaquenil, Prednisone, tried Methotrexate, tried Cell Cept and currently am on Imuran with the other two. Medication is an individual journey and everyone responds differently. Your doctors will know what is best for you and what you are going through. I always come prepared when I see Rheumy, with lots of questions about side effects, etc. Hang in there!!!

Laura

LilBitE
New Member


Date Joined Jul 2012
Total Posts : 4
   Posted 8/30/2012 9:17 PM (GMT -6)   
Hi Tamara,
I too was diagnosed with Crohn's (UColitis )this year and soon will prob get diagnosis for Lupus too. I am very saddened by this and having a hard time coping. I'm struggeling to keep weight on while EVERYTHING seems to bother my digestive system. I am tired often. Any suggestions?

Julia Hill
Veteran Member


Date Joined Mar 2008
Total Posts : 562
   Posted 8/31/2012 8:37 PM (GMT -6)   
Hi,

Prednisone, MTX were used to treat me for Lupus and Crohn's.

Julia
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