Hello Julie. I am a bit amazed because I just came from my doctor's office and he thinks that I have trigeminal neuralgia. I also have lost the ability to smell and taste of food has not been the same lately...kind of blah or tastes like metal sometimes. My ENT said that there is nothing wrong with the sinus area so he has no clue. I also was recently diagnosed with vertigo and have tinnitus.
My question is...how did they diagnose you? Were there a lot of tests?
I never want to tell my doctor anything because I feel like he will think that I am a hypochondriac and I don't want to be one of "those" patients. It just seems like there is always something new. I call it the flavor of the week.
Anyway, I hope that someone else can help you more than I can. Best of luck!