How To Help Others?/MCTD

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LogansGrammy
Regular Member


Date Joined May 2012
Total Posts : 24
   Posted 6/23/2012 11:28 AM (GMT -6)   
Hello, All!  I hope and pray you're having a wonderful Saturday!  I've been doing online research on MCTD and have been unable to find an organization/association dedicated to MCTD.  I've noticed that my searches are usually directed to Lupus Foundations(s), Scleroderma Foundation(s), etc.  Is anyone aware of an organization dedicated to MCTD?  I really want to get involved in raising awareness, funds, etc., but don't know where to begin.  Any ideas?
 
Be blessed today!
 

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 6/23/2012 2:06 PM (GMT -6)   
Maybe they consider it falling under the Lupus umbrella?
Joy

Bsime
Veteran Member


Date Joined Apr 2006
Total Posts : 1344
   Posted 6/25/2012 4:52 PM (GMT -6)   
There is one site but is no longer in use.  It is hard to say where overlap diseases belong because each case is so different.  Some will have lupus only symptoms, some will have scleroderma, some will have polymyositis and the list goes on with other overlap conditions and combinations of conditions.  In my case, I had severe problems with lupus which presented first and even worse problems with pm.  Scleroderma, no big deal, except for raynauds but the other diseases can also be accompanied by raynauds.
 
In my opinion, each patient needs to go to a board that represent the symptoms he has.
 
There is an association that has a forum that looks at all AI diseases, AARDA.  
 
 
Bill

LogansGrammy
Regular Member


Date Joined May 2012
Total Posts : 24
   Posted 6/27/2012 12:21 PM (GMT -6)   
Hi, Bill!
 
I just read your response, immediately after having found the AARDA website, and sending an email to them regarding volunteer work.  How funny is that? 
 
Thank you so much for your response and assitance.  :)  I am looking forward to making a difference. 
 
Have a wonderful day!!
 
Shaun
MCTD (Lupus, Scleroderma, Polymyositis), Raynaud's, Sjogren's, Fibromyalgia, DDD, Chronic Fatigue, Scoliosis, Spina Bifida, COPD
Plaquenil, Evoxac, Zipsor, Gabapentin, Nucynta

"Trust in the Lord with all your heart and lean not on your own understanding. In all your ways acknowledge Him and He shall direct your path."
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