HELP - IS THIS A LUPUS FLARE

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Twinks
Regular Member


Date Joined Jan 2011
Total Posts : 66
   Posted 6/24/2012 5:45 PM (GMT -6)   
I have several episodes a day of severe head and dripping down my face and neck sweating. It will usually last about 30-45 minutes. It happens in church, out eating dinner, it does not seem to matter. However it is occuring more and more. I am newly diagnosed with Lupus and am on a small prescription of 5 mg of predisone until my med kicks in, in about 3 months. Is this what you would call a flare.

Any help at all would be greatly appreciated.

Thank you,

Twinks

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 6/24/2012 6:46 PM (GMT -6)   
Sounds like the predisone is making you sweat unless you're running fevers at the time.

I do get episodes of "hot". Where my body temp suddenly rises and I can't get cool. Is that what it feels like?
Joy

Twinks
Regular Member


Date Joined Jan 2011
Total Posts : 66
   Posted 6/24/2012 7:06 PM (GMT -6)   
No, I am not running a fever. It startes at the top of my head and progresses downward. It drips down more so on my right side of the face down and then just a little bit on the left. The right side really sweats more.

This started before I started prednisone. It just is really increasing more with a little bit of warm weather or if I am stressed about something.

Thank you for answering me.

Twinks

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 6/24/2012 9:17 PM (GMT -6)   
It is probably the lupus. Lupus can easily affect hormones, which then in turn really mess with our heating/cooling systems. And Lupus is easily aggravated by heat, sun, and stress.

I sweat at about 4:30 pm, even if inside a room cooled to 64 degrees. No clue why it's so regular, it just is. Also at other random times of night and/or day. I don't call it a flare, as it's over as quickly as it comes.

Do remember to mention to your doctor, as every little clue helps in getting your particular presentation of lupus under control.
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING-LUPUS & LUPUS-RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde

Daione
New Member


Date Joined Apr 2012
Total Posts : 2
   Posted 6/26/2012 5:48 PM (GMT -6)   
They said to stay out of the Sun. Since have read that I seem to want to be in the Sun all the time. But I do notice something swells up and pain comes a few days after my enjoyment in the Sun. It is hard to believe all this is happening.

Twinks
Regular Member


Date Joined Jan 2011
Total Posts : 66
   Posted 6/26/2012 8:53 PM (GMT -6)   
I am so newly diagnosed it's so hard to learn all the Lupus encompasses. Right now my head sweating is so severe that it is embarrasing and very hard to be around people when it starts and I never have an advance warning other than a few drops down the side of my face. Thank you for your reply. It is really hard to stay out of the sun when you are out running errands and getting in and out of the car and wearing a hat I look ridiculous because I have such a small head I get lost in the hat.

Twinkie

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 6/26/2012 9:07 PM (GMT -6)   
Twinkles,
My family gets a kick out of my hat. It's a 8 inch brim, floppy woven-knit type you would see on a beach or on a gardener.
My mother keeps asking me if I'm going to pull cotton when I put it on. She acts like it embarress her to be seen with me places. She always asks me to take it off when I go to church or out to eat. I tell her only when there is no sunlight or fluorescent lights overhead.
I've never really cared how I looked to others. As long as I'm comfortable, I'm happy.
Joy

Twinks
Regular Member


Date Joined Jan 2011
Total Posts : 66
   Posted 6/27/2012 7:39 AM (GMT -6)   
Sounds like a really fun hat. That is the kind I am going to look for.

Do you wear it every time you go out?

Twinks

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 6/27/2012 10:33 AM (GMT -6)   
Yes, everywhere and everytime. I bought it at coolibar.com. They've got great sun hats.

It's also crushable and can be shoved into a bag and come out looking fine.

They call it the packable wide brim hat ($35).
Joy

Twinks
Regular Member


Date Joined Jan 2011
Total Posts : 66
   Posted 6/27/2012 12:05 PM (GMT -6)   
You probably have hair that looks great all the time.

Mine is short and has a lot of product in it just to look right and then putting a hat on top of it, well then I would have to go back and re-do my hair all over again. Thus my hesitation of wearing a hat.

Twinks

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 6/27/2012 1:57 PM (GMT -6)   
I have a short shaggy type haircut now. I use a lot of hairspray to fluff it up on top.
Do you find that your hair is getting thinner? My hairstylist used to be amazed at how much thick hair I have. Now she says it's thinner and I see my pink scalp more and more.
Joy

Twinks
Regular Member


Date Joined Jan 2011
Total Posts : 66
   Posted 6/27/2012 4:08 PM (GMT -6)   
I have always had fine hair and my husband calls it flyfuzz. It does seem to be getting a little thinner. And I am vain enough to not want my hair ruined under a hat after I spend a half hour making it look presentable.

I have been in bed all day and now at 3 pm I am up. Took my temp. and for the first time I am running a slight temp. I am one who never runs a temperature so this Lupus stuff I see is not going to be nice.

How long have you had Lupus.

Twinks.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 6/27/2012 5:38 PM (GMT -6)   
I had weird sun rashes last January. Went to an allergist for the rashes. He took an ANA test and referred me to a rheumy. The Rheumy diagnosed me after taking blood work and interviewing me in March last year.

Yes, I get fevers too. Most of the time my body temp is 69.6 to 71.1. If my temp is "normal" I'm very sick.
Joy
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