Had to stop taking Plaquenil

Anyone?

I have never taken Plaquenil, but I do manage without it. I starting with taking 2 evening in primrose 1300 and then needed to go to 4. I also worked my way up with fish oil to 4 a day. For the inflammation I take Tumeric Curcumin 500mg at 4 a day.
One a month at least 2 hrs. after any med or vitamin I take 6 charcoal pills the first night and follow with 4 charcoal pills each night for a week. This seems to get rid of the toxins and keeps the sores I get under control. The fish oil and evening in primrose help to raise your GLA to keep you ANA more balanced. When my GLA is off...so is my vision. You should see an ophthalmologist to make sure that there is nothing serious going on. If you take anything over a baby aspirin your GLA will drop like a rocket. Besides all of this, try not to let it get to you. Think of it as a challenge and you are going to win. Eat well and check out the sites on good food for you and the foods that will trigger a flare up. Get plenty of exercise, walking is great. You need to keep your body in as good as condition as possible.

Hi Lawchick,

I had to go off Plaquenil because I did have eye problems from it but I had been on it for over 20 years. I had pains like your saying, heavy legs, aches and pains, severe fatigue. My doctor has me on meloxicam (sp) and savella. I was so afraid of savella because of all I have read, but decided to give it a try. I take 25 mg in the morning and evening. In the because the nausea and dizziness was awful and I thought I wouldn't be able to tolerate it, but I tough it out because it was helping with all the pains and the fatigue. It took awhile but now I like it. Can't I am always pain free, and sometimes I sit down and wake up without realizing I fell asleep lol, but then again I never realized how much Plaquenil helped until I stopped taking it.

Hope this helped some. But what works for one of us, doesn't always work for others, remember that too.

Have a good day today, I am, and I am glad for that.
Debbie

Hi guys,

I actually just started Plaquenil again. I have decided that I am better off taking it than not taking it. Even everyone at my job was concerned and thought I should give it another go, they could tell how sick I was getting.

PJ it is odd that you would have eye problems after only days but I everyone reacts to side effects differerntly.

Hello, just thought that I would share my experience with plaquenil and I can begin by saying that it is very limited. If you have had the opportunity to investigate the medication you know that it is an anti-milarial. Since we know that milaria is an aggressive condition we can assume that plaquenil is a big deal. The drug is not for everyone. I didn't do well with it at all and believe that it made my symptoms worse. Yet, I have been told that it is a God-send by many people. I have read that you are experiencing a good result on your second go round and I wish you continued comfort and eventual remission. I have been treating for Lupus for twelve years and I have learned to view the medications like a "Mad Scientist", Lol! Some medications work and others don't and that is all a part of the journey. We deal with the specific symptom and hope that it goes away. After awhile you'll be as well versed as your doctors. After all, you know the most about what makes you feel better and the doctor takes a "history" at the beginning of each visit for just that reason! Glad you're doing better! L

Lawchick, I was wondering how the Plaquenil is going for you. I decided to start taking one pill and see how it goes. I've been on it for a week now, no fat itchy tongue. yet...I decided to give it another try since there isn't much else I can take and well, what have I got to lose?HA!!
Hope things are going good for you

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pbjsammich :p
RA SLE
Acid Reflux/GERD

There's methrotrexate, cellcept, and imaran(?).

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Joy
Lupus, RA, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

Have been on hydroxychloroquine for about 6 years now. Since I stopped eating meat, chicken, and most dairy, I have been off prednisone for 6 months. Am really worried about my eyesight. Is getting worse. I have cut my dosage in half and now quarter. I want to quit cold but am afraid of a return of my lupus symptoms. And I don't want to go on prednisone again. I also take methotrexate. Any advice from anyone with lupus? I am a male by the way.

Yes, have had eye exams each year and they do the ones for hydroxy users. But I have read that when they do find damage it is irreversible and may continue to worsen. Maybe until you are blind.

lawchick my name is chellety and yes i have had horrbile side effects with the plaquenil they say it is suppose to be the best medication you can use for lupus but i was getting symptoms of that of a diabetes patient like gout in my toe, it was horrible pain and burning OMG, sounds weird but i stop taking the plaquenil and stuck to predisone, may be hydrochloriquine the generic brand might be easier on you, but everyone is different

that is awesome, thats wonderful, im actually trying to come off the predisone myself, i'm trying to come off meat as well