the human slug...

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

pbjsammich
Regular Member


Date Joined Jun 2012
Total Posts : 66
   Posted 6/26/2012 8:19 PM (GMT -6)   
I had to quit taking methotrexate several weeks ago and am now the human slug. Actually I started feeling sluggish some time before, but this is getting annoying. My rhuemy called and told me to stop taking the methotrexate due to a drastic drop in my rbc and wbc count from the previous weeks labs. I know that a drop in those counts will cause a person to feel tired and light headed but this is ridiculous. I get worn out from walking around in the backyard and I've stopped eating. I have to make myself eat when I do and I have to inhale food just to make sure I'll eat something. I was weaning myself off my favorite drink-Mtn Dew but find I will actually feel better after taking a few drinks now. Is this normal?
 

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 6/26/2012 9:04 PM (GMT -6)   
The caffine and sugar in Mtn Dew is giving you energy boosts.

When I'm fatigued sometimes raising my arm is exhausting. It is possible to be so tired that you don't want to eat.
Joy

pbjsammich
Regular Member


Date Joined Jun 2012
Total Posts : 66
   Posted 6/26/2012 9:13 PM (GMT -6)   
mmmmmmmmmmmm  sugar...
oh yeah, makes sense.
 
yup, I do have to tell myself, if I can get up and get dressed, I can lay back down...I've been taking a high powered vitamin but it only helps to get me through the common tasks-showering, dressing; apparently eating is not one of the tasks lupus wants me to accomplish.
 
Thanks Couchtater.. smilewinkgrin

Lynnwood
Veteran Member


Date Joined May 2005
Total Posts : 7725
   Posted 6/26/2012 10:52 PM (GMT -6)   
Both Lupus and the meds can mess with your appetite big time. When I couldn't eat I ended up rationalizing that eating anything was better than eating nothing at all -- and ended up gaining some weight I've had a hard time getting off now that my appetite has stabilized. And not eating at all also will add weight... And to top it all off, eating poorly or not eating will make you even tireder. Fun, huh?

Lupus is often initially confused with Chronic Fatigue Syndrome -- exhaustion isn't unusual. I've had years where taking a shower and getting dressed wore me out -- when sleeping 18+ hours a day!

I would suggest trying a high-protein meal replacement drink at least once a day. Protein helps with longer-term energy and healing. Try and avoid the sugar and breads...they can leave you sluggish for long periods of time.

And most importantly --- talk to your doctor about the fatgiue AND the appetite!

Hope you feel better soon,
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING-LUPUS & LUPUS-RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde

Butterflake
Veteran Member


Date Joined Jun 2006
Total Posts : 1650
   Posted 6/27/2012 6:52 PM (GMT -6)   
Well Sweetie, if you're a human slug you may also want to avoid salt..... smilewinkgrin    Love, Butterflake

pbjsammich
Regular Member


Date Joined Jun 2012
Total Posts : 66
   Posted 6/27/2012 6:54 PM (GMT -6)   
Butterflake, that's probably very good advice!
pbjsammich :p
RA SLE
Acid Reflux/GERD

pbjsammich
Regular Member


Date Joined Jun 2012
Total Posts : 66
   Posted 6/27/2012 6:57 PM (GMT -6)   
Lynnwood, Thanks for the info about protein shakes. I've never been big on them due to the weird taste or how they feel on my tongue but will give em a shot again. They remind me of that stuff they make you drink when taking xrays of your gut....
pbjsammich :p
RA SLE
Acid Reflux/GERD

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 6/27/2012 9:29 PM (GMT -6)   
Try muscle milk, gulcernia shakes, or boost high protein.
I love the gulcernia drinks.
Joy

oreo11
Regular Member


Date Joined Feb 2011
Total Posts : 399
   Posted 6/27/2012 10:55 PM (GMT -6)   
My idea of a protein shake is frozen yougurt/ice cream, fresh fruit (like bananas and strawberries) and good quality protein powder blended together. Blueberries are wonderful because they are great anti-oxidants. When my appetite ebbs, I gravitate towards comfort food. For me, it's thick, stewy soups. A good trick that I use is to make a big pot of my favorite soup when I am feeling strong and freeze servings in individual containers to be used when I am feeling poorly. And strangely, I also like to sip on grapefruit soda.

Laura

pbjsammich
Regular Member


Date Joined Jun 2012
Total Posts : 66
   Posted 7/2/2012 10:24 PM (GMT -6)   
Oreo11, you just gave me a good idea. I totally forgot about the fresh shakes. well, thank you lupus,lol....I have a smoothie maker or whatever that thing is that was mailed to me while i was deployed. It ranked up there with being mailed water wings(I was in the southern area of Afghanistan, I either was up in the mountains or down on the flats)
grapefruit soda???hmmm. I'll stick to my mountain dew which is my fav soda. weird thing, right now, I have no desire to drink it. Normal water makes my tummy hurt so I try to drink sweet tea or vitamin water. anything with sugar in it. I think having my lupus has turned me into a hummingbird or something.
I tried a glucerna, a few minutes later I was doubled over. Apparently my tummy didn't like it.
ok, time to get to bed and lay there and pretend I can sleep...
New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, September 26, 2018 8:18 AM (GMT -6)
There are a total of 3,006,740 posts in 329,388 threads.
View Active Threads


Who's Online
This forum has 161849 registered members. Please welcome our newest member, Michael007.
202 Guest(s), 6 Registered Member(s) are currently online.  Details
HappyRick, pombear, TokyoPVCs, Darla, Minnesota, iPoop