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lupus_newbie
New Member


Date Joined Mar 2012
Total Posts : 6
   Posted 7/3/2012 7:11 AM (GMT -6)   
Good Morning,
I just took my first dose of Methotrexate this weekend and it knocked me on my bum. I felt disgusting and sick. I was wondering if anyone else had this problem? I really don't want to take it again :S My Rheumy is on holidays for the whole month of July and I am not sure what to do.

kmqit
New Member


Date Joined Jul 2012
Total Posts : 8
   Posted 7/3/2012 10:31 AM (GMT -6)   
I took Methotrexate for probably two months? Maybe. I assume you are taking it just once a week? It made me feel sick to my stomach, and I lost a lot of hair. (it is a pill form of chemo) It wasn't nearly as bad as the IV of Chemo, but it still was terrible. It ended up not working for me ( I have lupus nephritis) and I have switched to Cellcept. My new rheum doesn't think metho is that helpful, and so he switched me. The cellcept in a two month period has helped my kidneys a lot.

I do think that over time you will adjust to the metho and it wont knock you so hard each time. I would hope your rheum has an on call doc for you to get a hold of, if not I would go see someone else. You need a doc that is able to be reached when needed.

Best of luck, I hope that helped some

lupus_newbie
New Member


Date Joined Mar 2012
Total Posts : 6
   Posted 7/3/2012 11:08 AM (GMT -6)   
Hi,
I am to take it once a week...I was told it would make me nauseated but it was all I could do not to vomit :( I won`t go into details but it was honestly by far my worst experience with medication. I am on the folic acid to try and help but I really am terrified to take it again. :S

To be honest I am not in love with my rhuemy. He comes with all recommendations and high qualifications but I am not a fan. My last dr. was amazing and called to check on how I was adjusting to my prednisone. I feel like this dr. is overloaded and could care less.

I have been doing research...my results of urinalysis came back last week before he put me on the metho. and I had a +1 for blood in my urine. I was told by my naturopath years ago (went for migraines) that I was losing a lot of protein. Is there possibility I have lupus nephritis? I still haven't been fully diagnosed with lupus.

I might take your advice and see if there is a dr in his place. I really hate the medication...I feel like it only makes me feel worse. :(

Thank you for your quick response!

kmqit
New Member


Date Joined Jul 2012
Total Posts : 8
   Posted 7/3/2012 11:51 AM (GMT -6)   
If you have lupus or not, leaking protein is not good, and sign of some kidney disfunction. I wouldn't worry so much about if it's lupus nephritis but just treating the leaking protein. I have switched many times throughout the years to different rheum when I feel they are no longer or we aren't on the same page as far as treatment. I am all for trying someone new.
I know about not wanting to take the meds again because you know you are taking something that will make you sick. That goes against human nature to put something in us we know will make you sick. But I have experienced a lot of very un-fun long processes to get well. At times you feel you are worse then when you started, but from experience, sometimes you have to go down before you can get back up and be strong again. Take your meds, you want to protect those kidneys!

I do know how hard this can be. I am sorry that you are experiencing this. But know that you are not alone in your fight to get better.
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