Hi I was reading your post and wow, the stuff you deal with. When I was first diagnosed with my RA and SLE, my rhuemy sat with me and went over ALL of the drugs and such that is used for my two diseases. THEN, he took a breath and said, ok, I went over all of that, here is what you can take and a few I think might help. My med list is very limited. out of noseyness? I asked about
the gold and he told me no, no you aren't going to do that. It's too expensive and dangerous. Also the benlysta was in that no way category. He had told me it causes more damage than good. I've never looked it up online to see why, but my doc told me it does make certain symptoms worse and in his opinion really not worthwhile not unless you like being hospitalized. ok, good enough for me.lol
It does make me wonder why you are suppressants like you said if your count is low. Also, if you are thinking the MTX isn't working, chances are you may be right. Like Lynnwood stated slowly weaning some drugs out of you may be your best bet.
I was directed to go off my mtx then wait several weeks then started the plaquinel which I had a reaction to, so now i'm getting that out of my system. I kinda of miss the mtx in the way I could actually move around but not the low cell count issue and not eating. Kind of weird now that I think about it, I could move but had no energy to. hmm us lupus people are odd.lol anyway.
As for the mil hospital not using benylsta, well, it is a nasty drug, and there are issues of them issuing it without really understanding the effects. There are way too many symptoms lupus patients present that may be considered something else.
I really hope you find some relief good luck