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zeal4me
New Member


Date Joined Jul 2012
Total Posts : 9
   Posted 7/10/2012 9:38 AM (GMT -6)   
Hello all,
 
I am also new to this forum.  I just received my lab results and my doctor is gone till August, so I won't see him till Aug 10.
My ANA pattern is dual with a Speckled pattern Titer 1:320 and a Nucleolar pattern titer 1:280.
 
Does this mean the ANA test is positive?  Or can someone explain what all this means?
 
Thanks...a little confused sad

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 7/10/2012 4:38 PM (GMT -6)   
Welcome,

Yes, the test is positive for an autoimmune problem. Which one I don't know....Only a rhuematologist can tell.
You can read up on how to read test results on labsonline.com.
Also go to lupus.org to find how lupus is diagnosed.

Stick around for any more questions.
Joy

zeal4me
New Member


Date Joined Jul 2012
Total Posts : 9
   Posted 7/11/2012 9:11 AM (GMT -6)   
Hello Joy and thanks for your kind reply. My daughter works for a law-firm that has a nurse on staff, so she looked at my lab results yesterday and pretty much explained I should see a Rheumatologist ASAP. I have a phone call in to see if one of the other doctors can refer me to someone so I can ge the ball rolling. I don't want to wait another month. Thanks for the websites...I will check them out.

So...how are you doing? Can you tell me what medical condition you have and how long have you had it?

Thanks,
Cynthia

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 7/11/2012 9:56 AM (GMT -6)   
I have systematic lupus.
I was diagnosed last year after a year of feeling rotten then suddenly feeling a whole lot worse.
I have the joint pains everywhere, fatigue, sun sensitivity, and brain fog.

I'm trying to get on disability right now.
Joy

zeal4me
New Member


Date Joined Jul 2012
Total Posts : 9
   Posted 7/11/2012 12:08 PM (GMT -6)   
I'm sorry to hear that. I have some of the same symptoms. I'm anxious to find out what's going on.
Are you working? And are you referring to Social Security Disability? I hope all that works out.

I'm working full time...been at the same job for 34 years. I'm 57 yrs old. Can't afford to retire, but may have to...we'll see.

Do you take meds that work for your pain? I'm currently taking Lyrica until I get a diagnosis. It's actually working, which is confusing to me because they say you can't have Fibromyalgia if you have a positive ANA.

I don't like this waiting...

Hope you're having a good day today :)
Cynthia

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 7/11/2012 12:26 PM (GMT -6)   
I was recently laid off due to a poor evaluation and budget cuts. I've got private LTD insurance I'm trying to get approved before my insurance runs out in two months.
I've got to get started on my list of things for SSD.

I'm on two medicines for pain (tramadol and nabumetone) plus paxil. I'm afraid the paxil is bad for my stomach or either I've got a bug. Stomach sore and upset a little.
Joy

zeal4me
New Member


Date Joined Jul 2012
Total Posts : 9
   Posted 7/11/2012 1:01 PM (GMT -6)   
wow...laid off...can't believe they hit you when you were really down....good that you have LTD...I don't & I would hate to lose my health insurance without a back up plan....this stuff is not for sissy's...it's expensive!

Hope you're feeling better soon...gotta work on my day job now...you take care and hang in there.

Cynthia

lucysgd
Veteran Member


Date Joined Jun 2008
Total Posts : 675
   Posted 7/11/2012 9:55 PM (GMT -6)   
Hi Cynthia and welcome -
 
 I wanted to chime in on the positive ANA and fibromyalgia.  I was dx'd with Fibro in '98 - when I was 44 (I'm 58 now).  It came on after a very serious "mystery virus" that had me jaundiced with major liver inflammation, fever for weeks and utter exhaustion with muscle weakness and joint pain, weight loss and rash.  It took me a good 6 months to semi-recover from that (I would still get very fatigued and sometimes feverish if I did too much) and I had to quit my job after trying to return part time twice.  Fever came back along with the rash, etc.   The doctor never did figure out what the source of the virus was - I knew nothing about autoimmune disease at the time, but it certainly felt like they checked me for everything under the sun.  None of the viral hepatitis tests were positive, but my liver enzymes were in the 600's.
  
Within a year, I returned to the doctor with malaise, fatigue, and muscle pain that she dismissed as "a little fibro" and told me to exercise.  It's not an uncommon story.  I limped along with the fibro diagnosis - good days, bad days, horrible days.  In 2005 I had another onset of the fever, and all the same symptoms only milder.  This time the doc sent me to a rheumatologist who ran ANA and all the other AI stuff - and at that time it was negative.  I tried Neurontin for a month, but couldn't tolerate it.  This rheumie concurred with the fibro DX.  I felt strongly that something else besides fibro was going on with me.  In the meantime I was suffering with back pain and disc trouble, yada yada. 
 
I changed GP's and when I asked for the records, what I got had nothing recorded from '97 - so I'll never know if I was tested for autoimmune disorders that first go-round.   In 2007 I was sent to a different rheumatologist by the new GP, after additional problems surfaced.  This time the ANA was positive -  with similar results to yours. That rheumie suspected Lupus, but none of the other test results were conclusive for it.  She kept testing me every couple of months and the ANA continued to climb, with two patterns, like yours, and eventually put me on Plaquenil. 
 
The thing about fibro is that the rheumie initially said fibro would not cause a positive ANA, which indicated an autoimmune disorder.  Then she said the opposite.  If you research it you will find both opinions, though the predominant one is that fibro doesn't cause inflammation or a positive ANA.  However, (I'm finally getting to the point - sorry about the ramble) it is not uncommon to have both problems.  The usual thing is to develop the Lupus and then the fibro follows, according to what I've read.  So be forewarned, it may not be an "either-or" situation, but more of an "and".   I was also told some people could have positive ANA's with no symptoms.  If you are feeling better on the Lyrica, that may be a clue.  (Gathering clues becomes a full time occupation for a time.)
 
After 3 years on Plaquenil, my diagnosis remains Undifferentiated Connective Tissue Disease.  ANA remains positive in the 1:320 range (bumping up and down a little)  with nucleolar and speckled patterns.  Symptom-wise I line up with Lupus most closely.  The Plaquenil has helped immensely, though it was slow to get going.  
 
I hope you get your answers and the treatment that you need very quickly!  The waiting and not knowing is trying.  There are so many AI disorders, with overlapping symptoms, and it's challenging even for the rheumies to come up with a sure diagnosis.  The forum is a great place for support and information. 
 
Good Luck!
Lucy   
 
 
 
 

zeal4me
New Member


Date Joined Jul 2012
Total Posts : 9
   Posted 7/12/2012 10:44 AM (GMT -6)   
Hello Lucy and thanks for chiming in...

Wow! Sounds like you've been through a lot. I have been researching, etc. and it is confusing. I didn't mention that I saw the same Neurologist 16 years ago and received a positive ANA back then. He told me that he thought I had Lupus and sent me to a Rheumy that ruled it out. I was so scared I decided to just deal with it and stopped going to the Dr. and spending so much money. (I did save all my records)

So here I am 16 years later and same stuff is still going on. I've spent a lot of time after work and on weekends resting and catching up on my sleep. I have been divorced for 13 yrs and am now engaged. My fiance doesn't understand why I'm so fatigued all the time and it's difficult to explain the pain I am feeling when I look perfectly normal on the outside.

He is the one that talked me in to going back because he wants us to have more fun, do more things, etc. So I guess I'll play the waiting game.

I have been told by several that the ANA results frequently are a "false" positive. I don't understand why they can't come up with a definitive answer.

So, I guess I will continue to research until I see my Neuro in August.....I will be full of questions.

I am also keeping a journal of how I feel each day. I am pleasantly surprised that the Lyrica is working. We are slowly increasing the dosage and it's going fine. Hmm...

It does help to know and talk to others that are going through the same things.

Thanks for writing and all the best to you.

Cynthia

lucysgd
Veteran Member


Date Joined Jun 2008
Total Posts : 675
   Posted 7/12/2012 1:54 PM (GMT -6)   
It sure does seem like a wild goose chase at times.  You made me remember that in 1990 I was having attacks of extreme pain in my elbows for unknown reasons.  GP checked ANA at that time and it was 1:80 - which was considered positive, but low positive.  It was decided to wait and watch.  That problem hasn't really returned.  But others, obviously, developed.   
 
The ANA "false positives"  usually occur in the low range, as in 1:80.  Consistent positives in the higher ranges pretty much rule out a false positive result.   
 
I'm glad the Lyrica is working, though I do hope you will see a rheumatologist. 
 
Congratulations on your engagement and best of luck!
 
Lucy

kselibrary
New Member


Date Joined Jul 2012
Total Posts : 9
   Posted 7/12/2012 5:16 PM (GMT -6)   
August 10th must be the magic date for new appointments with a Rheumatologist.

I just got an ANA of 1:640. Good LORD! I'm so ... I don't know what I am.

My symptoms are:
all over itching
skin sensitivity
my bones and joints ache (more my bones ... forearms, shins, spine, although I have shoulder pain and knee pain as well)
I have what I would consider mild fatigue
Raynauds

I've had brain fog since my hyster 8 years ago. LOL

I guess I'm more scared than anything else. I have a call into my doctor to ask what kind (spattered...or whatever) of pattern I had on my ANA.

I'll be hoping you get in to the doctor sooner. I will hope the same for me. I've asked to be put on the list for cancellations to see if I can get in earlier.

Karen

I also suffer from Crohns

zeal4me
New Member


Date Joined Jul 2012
Total Posts : 9
   Posted 7/13/2012 9:14 AM (GMT -6)   
I don't think it's fair to tell your patient that their ANA is positive, then go on vacation for a month. I tried to get one of the other Dr's in the office (Neuro) to refer me to a Rheumy, but they told me to wait till my Dr. returns....that's why my appt is in August, but not with a Rheumy.
I don't know what to do. The Lyrica has my ankles, face & fingers all swollen up. I'm tempted to go off on my own and find a Rheumy, but I don't know where to go or if it's even a good idea. I had a full MRI which is also at the Neurologist office and I have no idea what it looks like. I'm so glad it's Friday so I can go home & rest this weekend.

I told my fiance if he wanted out now's the time to go and he says he's not going anywhere...LOL! Thank goodness.

Oh...the Dr's office just called and told me to discontinue the Lyrica because of the swelling, so...okay, then. Guess the pain will be back.

Sigh...this is definitely not fun.

Thanks for writing and sharing your stories with me. It really helps & I feel sorry for all.

Cynthia

NanaBee
Veteran Member


Date Joined Jun 2005
Total Posts : 541
   Posted 7/13/2012 4:19 PM (GMT -6)   
I'm sorry to hear you are having such a hard time getting your results. I know how hard it is to wait. I couldn't take Lyrica either for the same reason as you. It made me swell up really bad. I am taking Mobic now and that seems to work quite well. I take it every day.

Hang in there. Do you have a primary care doctor that might be able to help you until you get in or maybe she could refer you to another rheumy?

Take care,
Mary Ann

zeal4me
New Member


Date Joined Jul 2012
Total Posts : 9
   Posted 7/16/2012 4:29 PM (GMT -6)   
Hello Mary Ann,

Well....as it turns out, the swelling went down the next day and I decided to give the Lyrica another try. So far, so good.

I'm just going to keep taking it till my Aug 10th appt with my Neurologist. Still have lots of Q's.....seems they would refer me to a Rheumatologist.....I don't know?

I understand that the ANA tests frequently are false positive...I don't get it, but still researching & making notes. If I have Lupus or some other Autoimune disease, then I think someone needs to figure it out.....SOON.

Thanks for telling me about your medication. I will make note of that, too.

Do you have Fibromyalgia? or something else.

Thanks,
Cynthia
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