lupus panniculitis

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New Member

Date Joined Jul 2012
Total Posts : 4
   Posted 7/10/2012 7:53 PM (GMT -6)   
confused  im looking for the right doctor to treat me was seeing a dermatologist although he did diagnose me he realy doesnt know how to treat me,i need help

Forum Moderator

Date Joined May 2005
Total Posts : 7674
   Posted 7/11/2012 9:26 AM (GMT -6)   
You probably need a rheumotologist to assess the lupus.
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde

New Member

Date Joined Jul 2012
Total Posts : 4
   Posted 7/11/2012 9:29 AM (GMT -6)   
i went to one and he said he couldnt treat me,i guess i shouldnt have given up .very frustrated about the lack of knowledge about my condition i will try another ty.

New Member

Date Joined Aug 2012
Total Posts : 1
   Posted 8/12/2012 9:15 PM (GMT -6)   
Hi. I was dx with sle 22 yrs ago. I had 4 children.premature..with lots of issues.36blood transfusions, 9 piccs,numerous central lines and nutrition tubing. I was 100 lbs and dying. They kept screwing around with treatments which were not needed.i was septic twice a.d now have seizures from a pain patch that also nearly killed me.
I have gained to 212 lbs now. Lots of junk steroids. And not one doc ever listened to me. The nodules hurt, burn, are so extreme after ten yrs of this no one has ever helped. A surgeon even got mad duri.g a consult.
Here I lay with mybrewsts hurtinv, stomach, even u.der my arms and legs have these nodules. I roll the around anx end up bruised. Will this last forever? I lie awake thinking about cutting them out. Not that I would but christ I cant take it anymore!!!!

New Member

Date Joined Oct 2012
Total Posts : 1
   Posted 10/17/2012 8:03 PM (GMT -6)   
Hello, I was just diagnosed with Lupus Panniculitis after a biopsy by a specialist Dermatologist out of Yale New Haven. He put me on 200mg twice a day of generic Plaquenil. I've been on the medication since Oct 1st 2012.
Hope this could be of help.
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