new member with positive ana and symptoms but doc said all in my head

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mamagigi
New Member


Date Joined Jul 2012
Total Posts : 2
   Posted 7/16/2012 3:13 PM (GMT -6)   
Hi, i just signed up and need some input on my situation....i have had joint pain for over a year now and my doctors are blowing me off that it is just caused by depression. Last year i was sent to a rheumy that ran tons of tests and everything came back normal....but he said since i was having so much joint pain, hair loss, headaches, fatigue, maybe it wasnt showing up yet and he decided to treat me with mexotectrate ( spelling?) I asked if possibly my silicone breasts implants might have something to do with it, but he said no. Well, i decided to have my implants removed and do the clean eating/natural aproach and for 9 months i was feeling great, until i went to hawaii in may....while i was there, all my pain started to return joint by joint. I have terrible pain and stiffness every morning, swollen painful hands, swollen ankles every evening, terrible back pain, chest pain with deep breaths, flank pain, fever every night around 99.9, etc....my spine doc did mri, had mild arthritis and disc disease, but he suspected my pain was systemic, so ran four tests and told me they would send to my primary care physician...

Sed rate 11
Ana positive by IFA
Ana pattern homogeneous pattern positive at 1:160
Hla b27 negative
Crp .02

I saw my doc today, she said my blood work was fine, that its all in my head, i must be depressed and to stop looking for something wrong...things get sore as we get older....im 39, female, work out, fit, i dont know what to do next? Should i just give up and accept the pain as getting older? Thank you!! And sorry this is so long

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 7/16/2012 3:20 PM (GMT -6)   
Was this the rheumy who said your blood was fine? If not, see a rheumy. Other docs aren't really trained or qualified to diagnose auto-immune diseases.
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING-LUPUS & LUPUS-RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde

Triple L
New Member


Date Joined Jul 2012
Total Posts : 8
   Posted 7/16/2012 3:23 PM (GMT -6)   
Keep in touch with your doctors even if you think that you know what it is (depression)! Good luck!

mamagigi
New Member


Date Joined Jul 2012
Total Posts : 2
   Posted 7/16/2012 3:39 PM (GMT -6)   
Thank u for the quick responses....it was my primary care doc that said my results were fine....than she got on my case cause i questioned the ana test....i said that online people have the same result as mine and same symptoms yet they get help rather than being accused of "looking for something to be wrong" she said too many people try to self diagnose now from what they read online and it gets in the way of her work....i dont have depression, but since i started to cry in her office, she said i was depressed....i told her i was depressed only because i feel awful and dont know what to do or how to feel better. Believe me, why would i or anyone want to feel like crap????

lucysgd
Veteran Member


Date Joined Jun 2008
Total Posts : 675
   Posted 7/16/2012 9:05 PM (GMT -6)   
The positive ANA is a clue - a component - that goes along with your symptoms.  It isn't an answer in itself.   It may take awhile to pull everything into focus.  You need a good rheumy, who follows you regularly, repeating tests to see if things are changing. 
 
Personally, I would look for another primary care doc as well.  I remember being in similar shoes 3 years ago.  It is very frustrating to feel so awful and not have answers.  Once I started treatment with Plaquenil, things got much better. 
 
My diagnosis is still UCTD (Undifferentiated Connective Tissue Disease) as my labs don't confirm anything more specific, just the consistent and fairly high ANA along with the symptoms.  I tried going off the Plaquenil and everything returned, so we know that is therapeutic for me.
 
Hang in there, and don't give up.  Incidentally, I also have a celiac diagnosis, which came after starting on the Plaquenil.  You said you felt much better for a time on the clean diet - you might want to investigate a possible connection there.  Untreated celiac can cause many similar symptoms.  Just a thought.
 
Good luck, and keep posting.
Lucy
 
 
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