SSD Appointment

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NanaBee
Veteran Member


Date Joined Jun 2005
Total Posts : 541
   Posted 7/27/2012 3:36 PM (GMT -6)   
I just got a phone call from Social Security Disability telling me that they have set up an appointment for me. I'm not sure if this is good news or bad news. Up to this point everything I have done has been through the mail.

I don't know any details yet. They are sending all the info in the mail to me.

Has anyone been through this process and want to share what their experience has been?

Thanks,
Mary Ann

suetoo
Regular Member


Date Joined Jan 2006
Total Posts : 395
   Posted 7/31/2012 8:27 AM (GMT -6)   
Hi!
This is good news, and part of the required process. I think it's an appt. to see their SSA physician. They are regular docs who are 'rent-a-docs' for the SSA, to give them an independent physical exam and dr. record/med hx review. Mine went really, really, well. He was very sympathetic, and had obviously reviewed my paperwork. And, I went on a sick, bad, day. Luckily, all my reflexes were gone, my balance was off, and he made sure to tell me to make sure I saw my rheumy, (which I already had, and he sent me to the neuro) for the very same issue. Neuro said...hmmnn, reflexes aren't good........that's lupus. And I was so blessed, that my SSD was approved in 2months, 3 weeks and a day. And everyone was helpful, the paperwork crushing, but human help given so readily. Good luck,

God knows, even if I don't....
CNS Lupus 2005, APS, Hashimoto's Thyroiditis, Degenerative Osteoarthritis, Asthma
Meds: Plaquenil, Neurontin, Thyroid, meloxicam, Aspirin, Atenolol and Norvasc, Prednisone 5mg daily. (20-40mg prn), Vit. B12 2400 mcgs, Vit D 1000U, Calcium, Flector patch prn, Ambien and Elavil every night. Advair, Albuterol and DuoNeb inhalers.

NanaBee
Veteran Member


Date Joined Jun 2005
Total Posts : 541
   Posted 7/31/2012 10:19 AM (GMT -6)   
Thanks, Sue for sharing your experience.

I spoke with someone again yesterday and they said it was a Dr. appointment and they are also sending me to a psychologist, too. I think they are doing that because I am now on meds for depression and anxiety, also.

I'm nervous to go but I will just go and be very honest with them about how I am.

I will let you know how it goes.

Mary Ann

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 7/31/2012 11:18 AM (GMT -6)   
I was sent to a regular physician, a rheumy, and a psychologist.

Just go and be honest about how you are. If it happens to be on a good day, say: "This is what it is today, a good day, but an average day is xyz and a bad day is ABC. Most days are Good/bad/average"

Although in my area the wait for SSD is rather long due to our very large population, I seem to recall that was closer to the end of the process for me. So hopefully it won't be much longer for you.

PS. Have someone drive you, so you can answer the question "did you drive yourself" with an honest NO.
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING-LUPUS & LUPUS-RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde

NanaBee
Veteran Member


Date Joined Jun 2005
Total Posts : 541
   Posted 8/1/2012 11:41 AM (GMT -6)   
Thanks, Lynwood. My husband already said he was going to go with me. I thought of that. Some of the paperwork we sent in said I couldn't be alone so I know I have to have someone with Me.

Mary Ann

pbjsammich
Regular Member


Date Joined Jun 2012
Total Posts : 66
   Posted 8/3/2012 7:56 PM (GMT -6)   
NanaBee, the exam is just a lot of range of motion things to go thru. The "doc" watches and evaluates. Be honest. I never had anything telling me to have someone with me, all my appts. I've done by myself. I guess that comes with having no one in my life, but oh well. I was asked if I can drive-which I can, short distances. I have no idea how my SSD case is going to turn out since I could not remember anything to tell the doc such as my symptoms. Apparently I was having a flare that morning, good ol stress. No I didn't say anything since I was doing good to move. water under that bridge....I am learning that not every doc knows what the heck lupus is and I am hoping you do not have to explain what it is and how it affects you. I an thinking that is part of my problem getting any kind of assistance here in my part of the world.
Good Luck!
pbjsammich :p
RA SLE
Acid Reflux/GERD

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 8/3/2012 9:47 PM (GMT -6)   
Because Lupus is so different for each of us, it is very important to discuss how it effects YOU. This is the time to present everything you wrote on the application as well as anything else you can think of.

If nothing else, "I'm must be having a bad day 'cause I can't even think of my symptoms" might help!

PS. My exam was much more than range of motion!
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING-LUPUS & LUPUS-RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 8/3/2012 10:01 PM (GMT -6)   
What was your exam like, lynnwood?
Joy
When life throws you lemons....
Pick them up and throw them right back at them! :))

NanaBee
Veteran Member


Date Joined Jun 2005
Total Posts : 541
   Posted 8/3/2012 10:56 PM (GMT -6)   
I know how you feel pbjsammich. My private disability company called me and asked why I couldn't work. I said because I have Lupus and my doctor said I can't. Then she said, "Well, why can't you work, what is it that makes you not able to work?" All I could think of to say was I am fatigued, in pain, and can't function. I felt like an idiot and felt like she felt I was lying.

After I hung up I thought well, that was dumb, I didn't tell her about not being able to stand for more than 10 minutes without feeling faint, that aI get very short of breath upon exertion, that I can't remember what I am doing when I do work, etc. etc.

I am learning that whenever I answer a question that I should base it on a bad day. So far whenever I have seen a doctor it has been a bad day so I'm telling the truth.

Good luck on your claim. Let me know how it goes. I will post after my doctor appointment on Tuesday.

pbjsammich
Regular Member


Date Joined Jun 2012
Total Posts : 66
   Posted 8/4/2012 6:26 PM (GMT -6)   
hmmmm are we living in the same state?????
 When I started my VA and SS claim, I was called by both and asked that lovely question as well. My case is rather weird but, yup, I felt the same way. Like I was some lazy lying slug which in reality, I get tired too fast and the standing kills my lower back, I could go on with the annoyances, but won't.lol I keep telling myself not everyone knows or understands what lupus is. This lovely disease is not like what I call the "known diseases". By that, I mean the kind that people hear about on a daily basis. It is frustrating and you have to be your own advocate at times. That alone drains you of any energy you hoped to keep. I've been told the same thing about saying what hurts and base everything on a bad day. Well, then i would have to carry a book because this past year has been a bad day. And i feel like I am lying most times. I don't know, yes I am venting, sorry.
I am tired of feelin like I am lying and I have low expectations of my outcome.
I do hope you have a better outcome than mine may be. :-)

NanaBee
Veteran Member


Date Joined Jun 2005
Total Posts : 541
   Posted 8/4/2012 9:46 PM (GMT -6)   
Don't get discouraged, just keep going one day at a time. I am appealing my private insurances denial and I will keep appealing it until I can't anymore.

I know it gets frustrating but we aren't lying,we know we are ill and can't work and our doctors have confirmed it. We just have to make the disability people know that.

I have been keeping a journal of how I feel. Someone on these boards recommended that. ( I can't remember, who, sorry). I am eventually going to send it to SSD and my private insurance for them to see how many bad days I have and what a bad day consists of. I just type it on my computer and save it.

Take care pbjsammich. Hang in there. Hugs,
Mary Ann
MCTD, Fibromyalgia, Pulmonary Stenosis, High Blood Pressure, IBS, Degenerative Disc Disease, Depression, Anxiety

"No matter what happens, God is in control. He is God, I am not, what a relief!"

pbjsammich
Regular Member


Date Joined Jun 2012
Total Posts : 66
   Posted 10/3/2012 3:52 PM (GMT -6)   
NanaBee,
I got my SSD. It's not much but, right now, it's a fortune. Now, the fun part, since I am retiring from the mil next month, I will not have insurance or be able to afford any type of insurance. I have found out the VA does not carry my Plaquinel or Celebrex. However, they do have all kinds of antidepressants. I was put on a few these past months-the reason why I haven't been on here. Had some weird issues with those.
I annoyed the shrink because after the second round of antidepressant I had a very bad reaction. I told her I wasn't taking anymore. they were hiding my lupus/ra flare ups and actually causing more of them. She shot back, but you were happy weren't you? my reply-well, yeah but it was all a lie. I needed to lay down so badly that I had anxiety attacks about it. I don't need to go thru my life as it is like that. She's currently trying to find other antidepressants she can put me on although I told her #$%@ no I am not taking anymore. I've a feeling she simply does not understand a chronic illness depression is the same but different for clinical depression. oh these silly doctors....
btw, Thanks for the hugs.
pbjsammich :p
RA SLE
Acid Reflux/GERD

NanaBee
Veteran Member


Date Joined Jun 2005
Total Posts : 541
   Posted 10/3/2012 5:21 PM (GMT -6)   
Pbjsammich,

I'm so glad you got your SSD. I got mine too and I was surprised because it is more than I thought I would get. I have to go on Cobra insurance now because my insurance stopped too. It is expensive but not as expensive if I didn't have any. Do you have that option?

I know how frustrating doctor's are. My primary physician told me I would never get disability because I wasn't sick enough. Well she doesn't see the whole picture and just concentrates on what she wants to concentrate on. She doesn't like my rheumy so I am going to switch doctors, after I tell her that I got SSD. LOL.

I hope things get better for you. If you need to talk, I'm here for you.

Take care,
Mary Ann

pbjsammich
Regular Member


Date Joined Jun 2012
Total Posts : 66
   Posted 10/3/2012 6:26 PM (GMT -6)   
NanaBee,
             unfortunately, I will not be able to afford insurance and pay my bills and meds. I will have to rely on the VA system but really hate to lose my civilian rhuemo since he's been with me from the beginning and is a great doc. It's not often you come across a doc that talks with you and asks you what way you want to go on treatment. He is honest and will let you know if he doesn't have an answer but will find it for you. I reckon I should be thankful that I will have the VA but am worried about their not carrying my particular meds. There's a new stress of wondering how to pay for them next month now.
heheheee, I like how you are going to switch docs and right to do so. How can you trust a medical person that doubts what is wrong with you. Makes me wonder if she doubts her own skills and knowledge. sorry, I have seen the spectrum of docs and I kind of have a tendacy to call it like I see it.
I hope you find a doc that sees the trees thru the forest!
nothin' but hugs to ya!!
Thanks for listening
pbjsammich
RA SLE
Acid Reflux/GERD

Ain't Life fun? :)
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